It's been a very busy 2 days for us. Yesterday Isaac had his orthotics appointment. We were late because the bus driver refused to let us on because there was a buggy in the wheelchair space. Don't get me started on that. The orthopaedic surgeon has decided that piedro boots aren't giving him enough support so he needs inserts in his piedro boots. When he does pe at school the teaching assistant will take the inserts out of his piedro boots and put them in his plimsoles.
On our way out Jeremiah noticed a sign about a party and free cake. It was the hospital's 70th birthday and there were lots of 1940's themed stuff going on. A journalist came and interviewed Isaac and Jeremiah and took photos. http://www.tauntonpeople.co.uk/Musgrove-Park-Hospital-throws-40s-themed-birthday/story-16813667-detail/story.html - this is the story. http://www.tauntonpeople.co.uk/pictures/Musgrove-Park-Hospital-Taunton-70th-birthday-bash/pictures-16813628-detail/pictures.html - these are the pictures.
Maddy's campaign has spread further. She won the Pride of Australia award and appeared on television as well. http://au.news.yahoo.com/today-tonight/health/article/-/14753623/maddisons-disease. She asks that everyone google Ehlers Danlos syndrome and read about it for 5 minutes.
Today both the big boys went to school. Malachi and I were nearly late, thanks to the bus, but we got there on time. Jeremiah went in without a backward glance and Isaac had to be prized off my leg. He had a good day though, he is absolutely shattered now. Pictures tomorrow hopefully.
Showing posts with label orthotics. Show all posts
Showing posts with label orthotics. Show all posts
Tuesday, 4 September 2012
Wednesday, 8 August 2012
Orthopaedics
Yesterday Isaac had his appointment with the orthopaedic surgeon. We got there early because the buses are so unpredictable and I'm glad we did because we got called in 20 mins before his appointment time. We took the ergo and the wheelchair and I found the ergo so much better than my other baby carrier. I think carrying him on my back will be better though as it's tricky paying the bus driver while trying to stop little hands from getting in my purse!
Isaac was still tired from his holiday 2 weeks ago and he was reluctant to show the dr his walking skills. But I managed to persuade him to get off the examination couch where he was trying to fall asleep and walk around the room. The dr agreed with me and the GP about his ankles being too unstable for him to wear plimsoles/daps for PE at school and so he needs to see the orthotist to sort out something. We already have an appointment with the orthotist on 3rd september to measure his feet for new piedro boots so we are going to have the PE shoes appointment then as well. We came out 10 mins before our appointment time so after a quick detour to the hospital shop for the older two to choose some sweets we came home. We were only gone for an hour and a half which has to be a new record.
Isaac was still tired from his holiday 2 weeks ago and he was reluctant to show the dr his walking skills. But I managed to persuade him to get off the examination couch where he was trying to fall asleep and walk around the room. The dr agreed with me and the GP about his ankles being too unstable for him to wear plimsoles/daps for PE at school and so he needs to see the orthotist to sort out something. We already have an appointment with the orthotist on 3rd september to measure his feet for new piedro boots so we are going to have the PE shoes appointment then as well. We came out 10 mins before our appointment time so after a quick detour to the hospital shop for the older two to choose some sweets we came home. We were only gone for an hour and a half which has to be a new record.
Monday, 23 July 2012
Malachi's orthotic appointment
Jeremiah and Isaac are away on their holidays so it was just me and Malachi at the hospital this morning. The good news is that they now do piedro boots small enough for Malachi's feet. The bad news is the tiniest ones look like the shoes you hire when you go bowling. Hopefully it won't be long before his feet are big enough for the boots like Isaac has which look a lot nicer I think. I also took the opportunity to take some photos of the old building before it gets knocked down. I have fond memories of pacing up and down the corridors there while in early labour with Malachi.
Tuesday, 5 June 2012
Update on us
Thought I'd better do an update post as a lot has happened in the last few weeks. On 11th May I got a phone call from exeter mobility centre asking me why we hadn't come to Isaac's appointment. Somehow the letter had got lost in the post, argh. On 12th May we had my birthday celebrations, going to a new park, cocktails in the garden and out for dinner. Then we all came down with the hideous tummy bug that was going round the school so I spent my 30th birthday cleaning up puke.
Last week was the week of appointments. On Monday we went to the GP who referred Isaac to the orthapeadic surgeon to try and sort out what shoes he can wear for PE. Then we went to orthotics at the hospital where they said that Isaac's feet haven't grown so he doesn't need new piedro boots. On tuesday Isaac did preschool in the morning while Malachi and I did breastfeeding group. The health visitor had a good moan at me for postponing Isaac and Malachi's immunisations for later in the week. In the afternoon we went to school to meet the occupational therapist, her student, the lady from the PIMS team and the school senco. The occupational therapist was lovely and actually asked Isaac what he wanted which was nice. She went round measuring everything and has ordered steps, grab rails and a toilet seat.
On Wednesday morning Isaac had his school induction meeting. We heard the same speech from the head and the teacher that we heard when Jeremiah started and we were shown a short video of what I thought would be the current reception class but turned out to be Jeremiah's year group. On Wednesday afternoon Isaac slept for 3 hours, absolutely shattered. On thursday Isaac was meant to be at preschool but at 11:30 they phoned me up and asked me to collect him as he had fallen asleep. So glad I postponed the immunisations. On Friday we had a letter from exter mobility centre and Isaac's new appointment is on 11th June. Isaac and I have already picked the wheelchair we would like. I really hope they agree and I'm worried they will offer us a special needs buggy or nothing at all. Isaac hates being "babied" because of his disabilities so he won't be happy if he has to go to school in a buggy. If we get nothing I won't be able to leave the house once he grows out of the buggy we have.
This week is half term. A chance to recharge our batteries and get some housework done before another busy week next week.
Last week was the week of appointments. On Monday we went to the GP who referred Isaac to the orthapeadic surgeon to try and sort out what shoes he can wear for PE. Then we went to orthotics at the hospital where they said that Isaac's feet haven't grown so he doesn't need new piedro boots. On tuesday Isaac did preschool in the morning while Malachi and I did breastfeeding group. The health visitor had a good moan at me for postponing Isaac and Malachi's immunisations for later in the week. In the afternoon we went to school to meet the occupational therapist, her student, the lady from the PIMS team and the school senco. The occupational therapist was lovely and actually asked Isaac what he wanted which was nice. She went round measuring everything and has ordered steps, grab rails and a toilet seat.
On Wednesday morning Isaac had his school induction meeting. We heard the same speech from the head and the teacher that we heard when Jeremiah started and we were shown a short video of what I thought would be the current reception class but turned out to be Jeremiah's year group. On Wednesday afternoon Isaac slept for 3 hours, absolutely shattered. On thursday Isaac was meant to be at preschool but at 11:30 they phoned me up and asked me to collect him as he had fallen asleep. So glad I postponed the immunisations. On Friday we had a letter from exter mobility centre and Isaac's new appointment is on 11th June. Isaac and I have already picked the wheelchair we would like. I really hope they agree and I'm worried they will offer us a special needs buggy or nothing at all. Isaac hates being "babied" because of his disabilities so he won't be happy if he has to go to school in a buggy. If we get nothing I won't be able to leave the house once he grows out of the buggy we have.
This week is half term. A chance to recharge our batteries and get some housework done before another busy week next week.
Friday, 11 May 2012
Malachi and physio
Malachi had his physio session on Wednesday. We nearly didn't make it thanks to the bus we needed to catch being a double decker. The physio was really pleased with his progress and thinks he will be walking in the summer. I sometimes feel that I don't take Malachi's issues seriously enough because he is not as bad as Isaac so it was good to know that he really was doing well and it wasn't just me thinking that. He is into everything at the moment, trying to nose dive off the changing mat and will crawl towards an open stairgate at the speed of light.
The physio wants Malachi to have piedro boots but his feet are so tiny they don't make them small enough. He is being referred to orthotics anyway to see if they can suggest anything. She also remembered Isaac which I thought was impressive seeing as she last saw Isaac at 5 months old. She said nobody could forget Isaac but I'm not sure if that's a good thing or not!
Isaac has a GP appointment next week to be referred to the orthopaedic team to sort out shoes for him to wear for PE at school. Then occupational therapy to measure him for a chair. Jeremiah is doing well. They had a supply teacher yesterday who brought his guitar which was very popular with the class. Even the little girl who has autism and doesn't do change well really liked him.
The physio wants Malachi to have piedro boots but his feet are so tiny they don't make them small enough. He is being referred to orthotics anyway to see if they can suggest anything. She also remembered Isaac which I thought was impressive seeing as she last saw Isaac at 5 months old. She said nobody could forget Isaac but I'm not sure if that's a good thing or not!
Isaac has a GP appointment next week to be referred to the orthopaedic team to sort out shoes for him to wear for PE at school. Then occupational therapy to measure him for a chair. Jeremiah is doing well. They had a supply teacher yesterday who brought his guitar which was very popular with the class. Even the little girl who has autism and doesn't do change well really liked him.
Subscribe to:
Posts (Atom)