Just realised I haven't posted in nearly 3 weeks. Isaac's school entry review went ok. One of those meetings where we all agree nothing has changed so we carry on as we are and review again next year. Malachi was very good although he was eyeing up the headmaster's fruit bowl and saying "nana" every so often. Apparantly Jeremiah has been telling Isaac's teachers how to look after Isaac when he thinks they are doing it wrong. I think this is sweet but I appreciate it must be driving Isaac's teachers crazy.
Children in need day came around again and we went to ASDA after school as usual so that Jeremiah could hug the man dressed up in a pudsey suit. Isaac wasn't too keen though which led to the following conversation:
Isaac: I could be on children in need
Jeremiah: No you couldn't
Isaac: Yes I could, I've got a wheelchair
Jeremiah: Yes, but you're scared of Pudsey
I think Jeremiah had a point!
Yesterday Isaac, Malachi and I had our flu jabs. Isaac went first as usual. It was the usual trauma of me picking him up and the nurse jabbing him ASAP. Not very dignified but better than being in hospital with flu (again). Oddly enough it was Malachi who calmed him down by not making a sound when he had his done, taking us all by surprise and stopping Isaac in his tracks. Then I had mine and off we went to buy cake as is tradition after an appointment where needles are involved.
My life with 5 children, all with special needs. 2 with mobility issues, 1 premmie with health issues, a cuddly miracle baby and an eccentric livewire on the spectrum
I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Showing posts with label SENCO. Show all posts
Showing posts with label SENCO. Show all posts
Wednesday, 28 November 2012
Monday, 8 October 2012
One happy Isaac
For the second time this term Isaac went into school happy. I finally got out of him what has been bothering him at school. Apparantly it is too loud so I had a chat with the TA and the SENCO and they are going to try and get some ear defenders for him.
In other news, the road is being resurfaced. Which for us means more delays with the buses. We were late for school again this morning and I was nearly late picking Jeremiah up. I am seriously considering learning to drive as I'm so fed up with being late all the time because of the buses. Also when Isaac turns 5 I will be spending £68 a week on bus fares.
Tomorrow I will be having the day off. Dropping Jeremiah off at school and then coming home and catching up with various jobs until it's time to pick him up again.
In other news, the road is being resurfaced. Which for us means more delays with the buses. We were late for school again this morning and I was nearly late picking Jeremiah up. I am seriously considering learning to drive as I'm so fed up with being late all the time because of the buses. Also when Isaac turns 5 I will be spending £68 a week on bus fares.
Tomorrow I will be having the day off. Dropping Jeremiah off at school and then coming home and catching up with various jobs until it's time to pick him up again.
Wednesday, 11 July 2012
Dancing with myself
Today has been one of those days. It started with Isaac not wanting to wake up which meant I had to dress him. He has fallen off the toilet today and generally been unsteady on his feet. So today I've been trying to do bits of housework in between helping Isaac with everything. Of course Malachi wasn’t keen on Isaac having all the attention so he was shouting as well. Nothing terrible happened but it was one of those days where I feel like I’m running round in circles. So I did the only thing you can do in this situation. Jeremiah, Isaac and Malachi had a quick early tea and for the last ½ an hour we have had my glee dvd on and we have been watching all the songs from the special features. Malachi is in the jumperoo and the older boys are dancing. Well, Isaac is on the floor mostly but at least he is happy. Jeremiah is attempting to breakdance which is absolutely hilarious.
No news from the SENCO today. But the class list for next year will be posted either tomorrow or friday. I don't mind what class Jeremiah is in but he is desperate to know one way or another.
Tuesday, 10 July 2012
Jeremiah's birthday, our wedding anniversary and more school stuff
Jeremiah had a great birthday. Here is is cake which was not made by me!
On Saturday we went to st fagins in the rain for Jeremiah's birthday treat. It was very good but we got very wet.
Malachi was standing holding on with very little support.
Yesterday I asked the school senco for an update on the adaptations as I hadn't heard anything. She hadn't heard anything either so she is going to try and chase her up. The paperwork needs doing by next week so we're getting a bit tight for time now. The senco is also not happy with the lady from the pims team who said that Isaac didn't need any adaptations because that slowed everything down. After talking to me and getting to know Isaac she is also now seriously considering applying for extra funding for Isaac which is pretty much the same as a statement after months of people saying he wouldn't need it and me not agreeing. We're still waiting to find out next years class allocations. The headmaster has sent out a letter saying he appreciates the concerns of the parents but no decision has been made yet. I hope they decide soon as Jeremiah is getting twtchy about it and is now asking several times a day.
Finally, today is our wedding anniversary and we have been married for 8 years. I could only find one wedding photo on the computer. Simon's uncle had been teasing me the day before saying that I would be late and I was determined to make it there on time. I made it to the church with a couple of minutes to spare and I ended up being late because I'd forgotten the photographer would want to take photos.
You can't see it very well in the photo but I had a cathedral length veil with sparkly bits in and a huge train. One of the advantages of being short is the train and veil were about a foot longer on me than they were meant to be.
Tuesday, 5 June 2012
Update on us
Thought I'd better do an update post as a lot has happened in the last few weeks. On 11th May I got a phone call from exeter mobility centre asking me why we hadn't come to Isaac's appointment. Somehow the letter had got lost in the post, argh. On 12th May we had my birthday celebrations, going to a new park, cocktails in the garden and out for dinner. Then we all came down with the hideous tummy bug that was going round the school so I spent my 30th birthday cleaning up puke.
Last week was the week of appointments. On Monday we went to the GP who referred Isaac to the orthapeadic surgeon to try and sort out what shoes he can wear for PE. Then we went to orthotics at the hospital where they said that Isaac's feet haven't grown so he doesn't need new piedro boots. On tuesday Isaac did preschool in the morning while Malachi and I did breastfeeding group. The health visitor had a good moan at me for postponing Isaac and Malachi's immunisations for later in the week. In the afternoon we went to school to meet the occupational therapist, her student, the lady from the PIMS team and the school senco. The occupational therapist was lovely and actually asked Isaac what he wanted which was nice. She went round measuring everything and has ordered steps, grab rails and a toilet seat.
On Wednesday morning Isaac had his school induction meeting. We heard the same speech from the head and the teacher that we heard when Jeremiah started and we were shown a short video of what I thought would be the current reception class but turned out to be Jeremiah's year group. On Wednesday afternoon Isaac slept for 3 hours, absolutely shattered. On thursday Isaac was meant to be at preschool but at 11:30 they phoned me up and asked me to collect him as he had fallen asleep. So glad I postponed the immunisations. On Friday we had a letter from exter mobility centre and Isaac's new appointment is on 11th June. Isaac and I have already picked the wheelchair we would like. I really hope they agree and I'm worried they will offer us a special needs buggy or nothing at all. Isaac hates being "babied" because of his disabilities so he won't be happy if he has to go to school in a buggy. If we get nothing I won't be able to leave the house once he grows out of the buggy we have.
This week is half term. A chance to recharge our batteries and get some housework done before another busy week next week.
Last week was the week of appointments. On Monday we went to the GP who referred Isaac to the orthapeadic surgeon to try and sort out what shoes he can wear for PE. Then we went to orthotics at the hospital where they said that Isaac's feet haven't grown so he doesn't need new piedro boots. On tuesday Isaac did preschool in the morning while Malachi and I did breastfeeding group. The health visitor had a good moan at me for postponing Isaac and Malachi's immunisations for later in the week. In the afternoon we went to school to meet the occupational therapist, her student, the lady from the PIMS team and the school senco. The occupational therapist was lovely and actually asked Isaac what he wanted which was nice. She went round measuring everything and has ordered steps, grab rails and a toilet seat.
On Wednesday morning Isaac had his school induction meeting. We heard the same speech from the head and the teacher that we heard when Jeremiah started and we were shown a short video of what I thought would be the current reception class but turned out to be Jeremiah's year group. On Wednesday afternoon Isaac slept for 3 hours, absolutely shattered. On thursday Isaac was meant to be at preschool but at 11:30 they phoned me up and asked me to collect him as he had fallen asleep. So glad I postponed the immunisations. On Friday we had a letter from exter mobility centre and Isaac's new appointment is on 11th June. Isaac and I have already picked the wheelchair we would like. I really hope they agree and I'm worried they will offer us a special needs buggy or nothing at all. Isaac hates being "babied" because of his disabilities so he won't be happy if he has to go to school in a buggy. If we get nothing I won't be able to leave the house once he grows out of the buggy we have.
This week is half term. A chance to recharge our batteries and get some housework done before another busy week next week.
Labels:
Baby groups,
birthday,
Hospital,
illness,
immunisations,
Isaac,
Jeremiah,
Malachi,
occupational therapy,
orthotics,
Park,
Pre-school,
School,
school holidays,
SENCO,
Tired,
wheelchair
Tuesday, 8 May 2012
All about Isaac
As Isaac gets ready to start school things seem to be all about him at the moment. We seem to have more and more appointments and different proffessionals are getting involved. We are still waiting rather impatiently for an appointment with wheelchair services. Isaac's friend has just got a wheelchair and Isaac had a go in it last week. It was so much easier to push than the buggy and Isaac could wheel himself a little way too.
Today I talked to the SENCO at school about Isaac going part time. He is going to start off going Monday, Wednesday and Friday mornings. I took him to the disabled toilet at school today but he couldn't manage it himself. He keeps saying it's his toilet and he wants to visit it every day. He is doing really well with the potty training and has been dry for 4 days in a row. It's a lot harder than when he was in nappies but I'm so proud of him for managing it. He is at the stage when he wants to try out every toilet when we are out so the time in between picking him up from preschool and picking Jeremiah up from school is quickly filled up with a toilet tour of Wellington! Isaac has been going to preschool all day on Thursdays as well as Tuesday mornings since Easter. He is enjoying it but he is absolutely shattered afterwards.
I will try and blog about Jeremiah and Malachi next time.
Today I talked to the SENCO at school about Isaac going part time. He is going to start off going Monday, Wednesday and Friday mornings. I took him to the disabled toilet at school today but he couldn't manage it himself. He keeps saying it's his toilet and he wants to visit it every day. He is doing really well with the potty training and has been dry for 4 days in a row. It's a lot harder than when he was in nappies but I'm so proud of him for managing it. He is at the stage when he wants to try out every toilet when we are out so the time in between picking him up from preschool and picking Jeremiah up from school is quickly filled up with a toilet tour of Wellington! Isaac has been going to preschool all day on Thursdays as well as Tuesday mornings since Easter. He is enjoying it but he is absolutely shattered afterwards.
I will try and blog about Jeremiah and Malachi next time.
Friday, 9 December 2011
T'was the fortnight before Christmas
Malachi is in a cuddle me or I'll scream the house down kind of mood today. So I'm catching up with emails and updating my blog.
Only one week at school before the holidays. In some ways I'm glad there is only 1 week left but on the other hand I haven't done my christmas cards yet or finished my christmas shopping. Jeremiah was a cow in the nativity play yesterday. It will be Isaac's last day at TOG on monday, then the christmas party on thursday. It will be quite emotional I think. Isaac has been going for 3 years and the staff there have helped him so much. I was originally planning to keep him going there until he started school but we are really struggling with transport at the moment and he technically doesn't need TOG any more.
I managed to talk to the reception teacher about Isaac's school needs. I don't think she realised he was that severe to be honest. She is going to talk to the senco about him and she reassured me that if he can only cope with 2 mornings a week at first then that's fine and they won't rush him.
We have a furry houseguest at the moment. A cat turned up last night and we are trying to find her owners without much luck so far. Simon is going to take her to the vet tomorrow to see if she is microchipped.
Only one week at school before the holidays. In some ways I'm glad there is only 1 week left but on the other hand I haven't done my christmas cards yet or finished my christmas shopping. Jeremiah was a cow in the nativity play yesterday. It will be Isaac's last day at TOG on monday, then the christmas party on thursday. It will be quite emotional I think. Isaac has been going for 3 years and the staff there have helped him so much. I was originally planning to keep him going there until he started school but we are really struggling with transport at the moment and he technically doesn't need TOG any more.
I managed to talk to the reception teacher about Isaac's school needs. I don't think she realised he was that severe to be honest. She is going to talk to the senco about him and she reassured me that if he can only cope with 2 mornings a week at first then that's fine and they won't rush him.
We have a furry houseguest at the moment. A cat turned up last night and we are trying to find her owners without much luck so far. Simon is going to take her to the vet tomorrow to see if she is microchipped.
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