I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Showing posts with label music. Show all posts
Showing posts with label music. Show all posts

Wednesday, 11 July 2012

Dancing with myself


Today has been one of those days. It started with Isaac not wanting to wake up which meant I had to dress him. He has fallen off the toilet today and generally been unsteady on his feet. So today I've been trying to do bits of housework in between helping Isaac with everything.  Of course Malachi wasn’t keen on Isaac having all the attention so he was shouting as well.  Nothing terrible happened but it was one of those days where I feel like I’m running round in circles.  So I did the only thing you can do in this situation.  Jeremiah, Isaac and Malachi had a quick early tea and for the last ½ an hour we have had my glee dvd on and we have been watching all the songs from the special features.  Malachi is in the jumperoo and the older boys are dancing.  Well, Isaac is on the floor mostly but at least he is happy.  Jeremiah is attempting to breakdance which is absolutely hilarious.

No news from the SENCO today.  But the class list for next year will be posted either tomorrow or friday.  I don't mind what class Jeremiah is in but he is desperate to know one way or another.

Saturday, 12 November 2011

Does anyone know?

How to comment on a blog?  Every time I try it says my account doesn't have access to make comments, even on my own blog.  Answers on a postcard please, or in a comment on this post.  If I reply you'll know I managed to work out how!

Jeremiah had his school photos done this week.  They are gorgeous.  He also went on a trip with his class across Wellington to the Methodist church.  This is one of the reasons I didn't become a teacher.  Because taking 26 4 and 5 year olds out would be my idea of a nightmare.  Still, everyone who went made it back in one piece and the teacher said they'd all been very good.

Isaac has had a good week.  On Sunday we had a jamming session together.  I held the guitar and did the chords while Isaac strummed.  The look of wonderment on his face when he realised he was playing a song was amazing.

Waitrose does this charity thing where you get a green token and you get a choice of 3 local charities to vote for.  You put your token in the box belonging to the charity you want to vote for and after a month or so they distribute some money between the 3 charities according to how many tokens are in each box.  We normally only go to Waitrose to use the loo but this month one of the chairities was the play therapy department at the hospital.  So we decided to go in, buy a cake and show our support.  Isaac went one step further and sat on top of the charity box telling everyone to put their token in the middle slot.  Anyone who didn't got a stern look and a "but the middle one is for the children at the hostital".  When the manager came and told him to get down he pulled his disabled rights card and said "I've got tired legs".  At this point I decided it was time to put him back in the buggy and go home.

Malachi is 10 months old today.  Still not crawling or even sitting but he is so happy and smiley.  He has 4 teeth and weighs 17lb 3oz which is on the 9th centile.  I am going to organise for him to have a session in the multi sensory room at TOG before Isaac leaves.  I think he will enjoy that, I know Isaac did when he was that age.

I got a phonecall from the genetics nurse this week.  She said that they were going to stop tyring to take blood from me and just look at Isaac's results which should come through in about 2 weeks.  She wasn't too hopeful about finding a link between Isaac's genetics and Malachi's though which I wish I'd known before letting Isaac have the blood test.  Also the geneticist has gone off sick and so our appointment will probably be in April next year which seems a long time away.

Monday, 29 August 2011

Time with Malachi

While Jeremiah and Isaac were with Simon's mum and dad I took the opportunity to spend some time with Malachi.  I got out the play nest thing that we haven't used since Isaac was a baby because it takes up half the living room.  We played with the treasure basket which Malachi loved.  Malachi's favourite thing was playing with Isaac's keyboard.  Of course this morning when I suggested to Isaac that Malachi might like to play with his toys I got "the look" from Isaac and a determined "no I don't think so" which is the standard response to anything he isn't keen on.
Now we are into the last week of the holidays.  I know it's a cliche but it's flown by.  Next Monday Jeremiah is back to school and next Wednesday Isaac starts preschool.  I will miss the freedom that we have in the holidays.