Finally whatever happened to stop me uploading photos has resolved itself. We're now halfway through the summer holidays. Jeremiah is on his way home from Scotland after climbing ben nevis. Isaac is mostly resting and refuelling ready to start year 3 in September. Malachi is excited about starting school. Ezekiel has had 5 lumbar punctures and 3 MRI scans so far and still no further forward than we were at the beginning. Zechariah is crawling and generally getting into everything.
My life with 5 children, all with special needs. 2 with mobility issues, 1 premmie with health issues, a cuddly miracle baby and an eccentric livewire on the spectrum
I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Showing posts with label hiking. Show all posts
Showing posts with label hiking. Show all posts
Wednesday, 12 August 2015
Tuesday, 10 September 2013
Back to school
This year the summer holidays have mostly involved activities at home. We usually go out a lot in the school holidays but going out with 4 children, a wheelchair and a double buggy is challenging to say the least.
I decided to take a book or film each week and do activities around the theme. I also wanted to make sure we did some messy play, to try and encourage Isaac. I think we did well, considering we have a small baby.
I decided to take a book or film each week and do activities around the theme. I also wanted to make sure we did some messy play, to try and encourage Isaac. I think we did well, considering we have a small baby.
Malachi making paper dolls in hairspray week
Jeremiah in the secret passage during famous five week
Isaac making snow angels during the lion, the witch and the wardrobe week
Playing with spaghetti during harry potter week
We even made it on holiday to Wales, where Jeremiah climbed Snowdon
Isaac wheeled himself round Cardiff. Malachi kept trying to make breaks for freedom and Ezekiel mostly slept and fed.
So now the older boys are back at school. We are having our bathroom refitted so mostly I am keeping Malachi out of the way of the builders. I'm also focussing more on Malachi-centred activities rather than helping him join in with whatever I have planned with the older boys in mind.
Ezekiel's needs are still mostly milk, cuddles and sleep. His weight gain has slowed down so we have been trying various things to help that. Weigh in tomorrow and then hip scan on Thursday.
Labels:
decorating,
Ezekiel,
hiking,
holiday,
Isaac,
Jeremiah,
Malachi,
messy play,
Play,
School,
school holidays,
weight,
wheelchair
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