After 2 days at home I decided to take the boys into wellington to get Malachi weighed, buy a few bits in ASDA, get some photos printed and hopefully run into some people we know from school, preschool etc while we were there. Not literally run into, although with Jeremiah pushing the buggy it was fairly likely!
We got Malachi weighed and measured at the childrens centre (8.77kg, 73cm). He'd lost a tiny bit of weight and his length had slowed down a bit but as he'd eaten quite a lot just before the last weigh in and hadn't this time I wasn't worried. He is now following the 2nd centile for weight and is 2.5cm below the 0.4th centile for height. Nicola and the dietician are still convinced that if he puts on loads of weight he will catch up in length but so far that hasn't happened. But as he is no longer failure to thrive the various professionals aren't panicking about his weight so we will carry on with the small amount of infatrini he is on and keep weighing him every month.
While we were in the childrens centre the builders at the school next door set off the smoke alarm so we all had to troop outside to the park and wait to be let back in. Isaac in particular wasn't impressed until the fire engine turned up!
On the walk back into town one of the front wheels of Isaac's wheelchair fell off going up a kerb and Jeremiah ran over a piece of glass and a thorn with the buggy which proved to much for the slime filled inner tubes. I managed to get the wheelchair wheel back on. It's the 2nd time it's happened so I knew what to do but I'll be phoning the engineers today to get them to come and have a look as it's not very safe and if the bolts fell down a drain when the wheel flys off another time we could end up stranded. We were only a little way from the bike shop by this point so I pushed the buggy while Jeremiah pushed the wheelchair, trailing slime as we went.
So it was an eventful trip out but we did end up meeting 4 friends which was nice. Getting out and about is hard with all 3 of them and the wheelchair etc but I'm glad we did it. Internet shopping is all very well but I think we all needed a change of scene and to talk with different people. We're off to the hospital on Tuesday which will be a good opportunity for Isaac to practice self propelling on the shiny floors.
Showing posts with label Infatrini. Show all posts
Showing posts with label Infatrini. Show all posts
Thursday, 2 August 2012
Tuesday, 28 February 2012
busy days
Yesterday Isaac had his feet measured and he needs the next size up piedro boots. I had a scary conversation with someone who's child has hypermobility about as severely as Isaac. Her son dislocates his joints which Isaac doesn't and I thought he wouldn't do but she told me that her son wasn't dislocating at Isaac's age, he started at 5 years old. There are times like this when I feel scared for his future. Then today a lady came to the breastfeeding group with her 2nd baby who had been going when Isaac was tiny. She asked how Isaac was, if he still had his feeding tube? He has come a long way in his short life.
Isaac had his assessment by the lady from the PIM's team (Physical Impairment Medical I think) at preschool. I stayed and watched. There wasn't any difference physically between him and the youngest children and he walked up the steps to the slide which he doesn't normally do at home. He went to sleep for 2 hours leaving me wondering how he will cope with a full day at school and if not how will I cope with walking into wellington and back 3 times a day.
Malachi was weighed today and had lost a tiny bit from last weigh in but gained from the last weigh in on those scales at that time of day. I suggested that I increase Malachi's infatrini again but the community nurse was reluctant to suggest that without approval from a paed so I have increased the infatrini back to 2 bottles a day and I need to phone Nicola tomorrow to tell her. We seem to have developed a pattern of Malachi gains weight, infatrini gets dropped/reduced, Malachi loses weight, infatrini increased over and over again. This time I will keep him on the increased dose for longer. For those who are interested Malachi now weighs 7.34kg which is 18lb 3oz if I remember rightly.
Isaac had his assessment by the lady from the PIM's team (Physical Impairment Medical I think) at preschool. I stayed and watched. There wasn't any difference physically between him and the youngest children and he walked up the steps to the slide which he doesn't normally do at home. He went to sleep for 2 hours leaving me wondering how he will cope with a full day at school and if not how will I cope with walking into wellington and back 3 times a day.
Malachi was weighed today and had lost a tiny bit from last weigh in but gained from the last weigh in on those scales at that time of day. I suggested that I increase Malachi's infatrini again but the community nurse was reluctant to suggest that without approval from a paed so I have increased the infatrini back to 2 bottles a day and I need to phone Nicola tomorrow to tell her. We seem to have developed a pattern of Malachi gains weight, infatrini gets dropped/reduced, Malachi loses weight, infatrini increased over and over again. This time I will keep him on the increased dose for longer. For those who are interested Malachi now weighs 7.34kg which is 18lb 3oz if I remember rightly.
Friday, 27 January 2012
Update on us
Malachi had his appointment with Nicola on Tuesday. We were a bit late due to 2 double decker buses coming along one after the other. I'd already dragged Isaac, Malachi, the folded buggy, handbag and changing bag onto a double decker bus once that day so I decided to take the chance that Nicola was running late. Malachi was weighed (7.4kg) and measured (67.9cm). Nicola was running late but I didn't mind that as I know she doesn't rush people when they have questions. Also there is so much for the children to do in the waiting room.
It looks like Malachi had lost that weight and reducing the infatrini was a bit premature. But increasing the infatrini again seems to be helping which is good so no need to panic about his weight. He is also being referred for more intensive physio. No news on Isaac's blood results yet.
Jeremiah got a certificate this week which was awarded at the church. We sat at the back near the aisle so we could get a good view of the children coming in. Jeremiah waved as usual and Isaac waved at Jeremiah and a couple of the other children who he knows as well. I don't know why but I always get a bit emotional when I see the children walking in crocodile fashion from the school to the church. The Headmaster first, then Haslett class, with two of them carrying the school flag. Jeremiah's class (Newnham) is always right at the end as they are the youngest. I think I'll need to take tissues with me the first time I watch Isaac walk to the church with the rest of his class. Hopefully he will make it without falling over.
It looks like Malachi had lost that weight and reducing the infatrini was a bit premature. But increasing the infatrini again seems to be helping which is good so no need to panic about his weight. He is also being referred for more intensive physio. No news on Isaac's blood results yet.
Jeremiah got a certificate this week which was awarded at the church. We sat at the back near the aisle so we could get a good view of the children coming in. Jeremiah waved as usual and Isaac waved at Jeremiah and a couple of the other children who he knows as well. I don't know why but I always get a bit emotional when I see the children walking in crocodile fashion from the school to the church. The Headmaster first, then Haslett class, with two of them carrying the school flag. Jeremiah's class (Newnham) is always right at the end as they are the youngest. I think I'll need to take tissues with me the first time I watch Isaac walk to the church with the rest of his class. Hopefully he will make it without falling over.
Thursday, 8 September 2011
Isaac at preschool and assorted ramblings
Isaac went off to preschool for the first time yesterday. He was absolutely fine and went off to play like he'd been going for years. This morning he took one step in the door and burst into tears. Absolutely shattered. I had a chat with the supervisor and we agreed that I would go and have a wander round town for 5-10 minutes and then phone them to see if he had settled. When I phoned he was fine so I went home. He'll be in bed early tonight I think, it's been a long week for him, and for all of us. Thank goodness it's Friday tomorrow.
On Tuesday we went to breastfeeding group. Apparantly there has been complaints from other mums about older children being at the group so they have stopped coming. The health visitor has suggested that we have 2 groups, one for non-mobile babies and one for mobile babies, toddlers and babies with older siblings who come too. Problem is I can't see them being able to find any peer supporters to run the group for non mobile babies if you have to have breastfed for 3 months at least to do the course (they prefer 6 months) and then you have to have childcare for your baby when he or she becomes mobile. From a selfish point of view it's annoying for me because I had volunteerd to do the peer supporter course but I can't now because they need someone for the non mobile group and I have Isaac and hopefully Malachi will be on the move soon anyway. Apart from that it was lovely to have some adult conversation again and 2 of the mums announced their pregnancies which was all very exciting and made me feel quite nostalgic although any hint of broodiness stopped when they started talking about morning sickness!
Yesterday after I'd taken Isaac to preschool I took the opportunity to get as much infatrini milk for Malachi as I could fit in the buggy. I managed to get one box in Isaac's seat and 2 bags in the basket. It's a good thing I thought of that as the pharmacy have said that I have to collect Malachi's medicines all in one go rather than in little bits at a time like I was doing. After school we went to the after school club at the church which Jeremiah's school is attached to. Parents stay and sit in the corner with tea and biscuits while the school aged children play games, do a craft activity and listen to a story. The toddlers mostly chase each other round the church. This time Jeremiah was old enough to do the activities without my help so I got to have a good gossip and a cuddle with my friend's baby girl. Isaac came up to me while I was cuddling the baby and he said in a loud whisper "mummy, you've got the wrong baby"
Like I said, it's been a long week and it's not over yet.
On Tuesday we went to breastfeeding group. Apparantly there has been complaints from other mums about older children being at the group so they have stopped coming. The health visitor has suggested that we have 2 groups, one for non-mobile babies and one for mobile babies, toddlers and babies with older siblings who come too. Problem is I can't see them being able to find any peer supporters to run the group for non mobile babies if you have to have breastfed for 3 months at least to do the course (they prefer 6 months) and then you have to have childcare for your baby when he or she becomes mobile. From a selfish point of view it's annoying for me because I had volunteerd to do the peer supporter course but I can't now because they need someone for the non mobile group and I have Isaac and hopefully Malachi will be on the move soon anyway. Apart from that it was lovely to have some adult conversation again and 2 of the mums announced their pregnancies which was all very exciting and made me feel quite nostalgic although any hint of broodiness stopped when they started talking about morning sickness!
Yesterday after I'd taken Isaac to preschool I took the opportunity to get as much infatrini milk for Malachi as I could fit in the buggy. I managed to get one box in Isaac's seat and 2 bags in the basket. It's a good thing I thought of that as the pharmacy have said that I have to collect Malachi's medicines all in one go rather than in little bits at a time like I was doing. After school we went to the after school club at the church which Jeremiah's school is attached to. Parents stay and sit in the corner with tea and biscuits while the school aged children play games, do a craft activity and listen to a story. The toddlers mostly chase each other round the church. This time Jeremiah was old enough to do the activities without my help so I got to have a good gossip and a cuddle with my friend's baby girl. Isaac came up to me while I was cuddling the baby and he said in a loud whisper "mummy, you've got the wrong baby"
Like I said, it's been a long week and it's not over yet.
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