We've just been plodding along as usual, counting down the days until half term. I phoned school transport and was told that Isaac is not disabled enough to qualify for free school transport but if I send them letters from Simon's employer (saying he is at work at school run time), my GP (saying that I can't walk 9 miles a day pushing Isaac in the wheelchair and carrying Malachi) and Isaac's paediatrician (saying that he can't walk to school) along with copies of the DLA award and blue badge then they would consider it. I'm not sure if it's worth it to be honest. But it's only a few letters and a bit of photocopying says the lady from the school transport office. Yes, added to the other "only's" that I have to do whenever Isaac needs anything. So far I have phoned the paediatrician who is on holiday and made an appointment to see the health visitor which we had to cancel because Isaac was poorly.
In the meantime we found out that breakfast club is only 70p per day so now Simon is taking Jeremiah to that every morning and I am taking Isaac on the days he is in and collecting both of them. So now one of my children is always on time for school. Isaac now has ear defenders for school to try and block out some of the noise. He took them to school for the first time today so hopefully he will have a better morning than he has done.
Isaac was in the local paper this week. A photographer went round to all the reception classes in Somerset and took a photo. So here it is, 15 happy smiling children, and Isaac in a strop.
http://somerset.newsprints.co.uk/view/22486829/st_johns_wellington_recepti_jpg
And Jeremiah's one from 2 years ago, because I'm having a nostalgic moment
http://somerset.newsprints.co.uk/view/16075019/stjohnsreceptionsgwk41_jpg
15th October marked the end of baby loss awareness week and as is tradition we lit Eleanor's candle at 7pm for the international wave of light. I dithered about whether to light 2 candles this year but I couldn't find one or think of an idea to make one that felt right for Elisha so we just lit the one that we usually light.
Isaac finally told me why he didn't like school. Apparantly it's too noisy so he is now the proud owner of some ear defenders. So now he is happy although the teacher is having trouble getting him to take them off when she wants to talk to him. And he is even more unwilling to play with the other children in his class. According to him, Jeremiah is his best friend and he doesn't need anyone else. Not sure what Jeremiah thinks about that!
Malachi is at that in between stage, more toddler than baby now and cruising round the furniture. He has a cold so he is back on his inhaler again. He has also learnt to take apart disposable nappies so he is back in cloth nappies for the forseeable future. He doesn't really have the right shape for cloth nappies as he is very short and rather chubby so finding nappies that fit under his trousers is a challenge. His 9-12 month trousers are a bit long anyway so we can't get away with moving up a size to accomodate his nappy.
My life with 5 children, all with special needs. 2 with mobility issues, 1 premmie with health issues, a cuddly miracle baby and an eccentric livewire on the spectrum
I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Showing posts with label baby wearing. Show all posts
Showing posts with label baby wearing. Show all posts
Wednesday, 24 October 2012
Saturday, 8 September 2012
The weekend
This week I feel like I've spent most of my time at the bus stop. In between bus journeys we have been very busy. The 6-9 month clothes have gone up in the loft and the 9-12 month clothes have come down. We cheered on St Andrews house at sports day. Isaac was pushed to his limits at school. Isaac's steps were installed by the doors to the reception class. Cars 2 was watched several times by 3 very tired boys. We went to the after school thing at the church where someone praised my boys behaviour (proud mummy moment). Jeremiah took part in the year 2 sprint and the infant school bat and beanbag races (another proud mummy moment). Malachi clapped when Jeremiah finished his race.
And now it's the weekend and I have mostly been doing housework and recharging my batteries ready for another busy week. I have been struggling with carrying Malachi while pushing Isaac in his wheelchair. The ergo is a lot better than anything else I've tried but however I do it a 19 month old is heavy. I've managed to get him on my back once and that was better but I haven't been able to do that since. Malachi likes to fling himself backwards at the crucial moment which makes me nervous. I have discovered a babywearing group fairly near us so I will try and get to the next meeting.
And now it's the weekend and I have mostly been doing housework and recharging my batteries ready for another busy week. I have been struggling with carrying Malachi while pushing Isaac in his wheelchair. The ergo is a lot better than anything else I've tried but however I do it a 19 month old is heavy. I've managed to get him on my back once and that was better but I haven't been able to do that since. Malachi likes to fling himself backwards at the crucial moment which makes me nervous. I have discovered a babywearing group fairly near us so I will try and get to the next meeting.
Isaac on his first day at school
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Wednesday, 8 August 2012
Orthopaedics
Yesterday Isaac had his appointment with the orthopaedic surgeon. We got there early because the buses are so unpredictable and I'm glad we did because we got called in 20 mins before his appointment time. We took the ergo and the wheelchair and I found the ergo so much better than my other baby carrier. I think carrying him on my back will be better though as it's tricky paying the bus driver while trying to stop little hands from getting in my purse!
Isaac was still tired from his holiday 2 weeks ago and he was reluctant to show the dr his walking skills. But I managed to persuade him to get off the examination couch where he was trying to fall asleep and walk around the room. The dr agreed with me and the GP about his ankles being too unstable for him to wear plimsoles/daps for PE at school and so he needs to see the orthotist to sort out something. We already have an appointment with the orthotist on 3rd september to measure his feet for new piedro boots so we are going to have the PE shoes appointment then as well. We came out 10 mins before our appointment time so after a quick detour to the hospital shop for the older two to choose some sweets we came home. We were only gone for an hour and a half which has to be a new record.
Isaac was still tired from his holiday 2 weeks ago and he was reluctant to show the dr his walking skills. But I managed to persuade him to get off the examination couch where he was trying to fall asleep and walk around the room. The dr agreed with me and the GP about his ankles being too unstable for him to wear plimsoles/daps for PE at school and so he needs to see the orthotist to sort out something. We already have an appointment with the orthotist on 3rd september to measure his feet for new piedro boots so we are going to have the PE shoes appointment then as well. We came out 10 mins before our appointment time so after a quick detour to the hospital shop for the older two to choose some sweets we came home. We were only gone for an hour and a half which has to be a new record.
Saturday, 4 August 2012
My new ergo is here!
So after a lot of dithering I finally bought an ergo baby carrier in a very fetching shade of cranberry. It arrived today and I've been having fun trying it out. According to the instructions the weight limit is 20kg which means technically I could carry Jeremiah and Isaac in it. I did try it with Isaac in but it was so low round his back that I decided not to try Jeremiah in it.
Malachi loves it and he feels so much lighter in it than he did in the 2nd hand mothercare one. I think it will be more comfortable with him on my back but I'm not brave enough to try that yet.
Malachi loves it and he feels so much lighter in it than he did in the 2nd hand mothercare one. I think it will be more comfortable with him on my back but I'm not brave enough to try that yet.
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