My life with 5 children, all with special needs. 2 with mobility issues, 1 premmie with health issues, a cuddly miracle baby and an eccentric livewire on the spectrum
I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Saturday, 23 March 2013
This week I've been...
...Suffering with a cold and doing Isaac's DLA form. I hate that form, 63 questions where I have to compare Isaac to a "normal" nearly 5 year old and explain the differences. Also a new question wanting details of all appointments for the last 12 months. All done while trying to have a conversation with Malachi about the Octonauts. At least it's done now and I just have to hope that it's renewed at the same rate as before, for longer than a year this time.
Labels:
disability,
DLA,
illness,
Isaac,
Malachi
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment