I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Thursday, 29 December 2011

Elisha Matthew

Elisha Matthew Pickard was born on 23rd December 2011 at 13+2 in Musgrove Park Hospital, Taunton.  He measured 19mm long.  He had joined his big sister in heaven at about 8+4

Thursday, 15 December 2011

School disco and TOG graduation

I've found my usb thingy so I can put photos from my phone on the computer.  So this blog post will probably be more photos than text.

Jeremiah's school disco was on tuesday.  He started leaping about straight away and Isaac was more cautious.  He got into it in the end though and although it was more like marching than dancing he had a whale of a time.
Isaac is the one in the stripy hat

I wouldn't normally put photos of other children on my blog but there's no way anyone will know who the other child is unless they were there.

Today was Isaac's last day at TOG.  Isaac, Malachi and I went to the christmas party and it was lovely seeing how well the other children were doing and to chat with the other parents.

Malachi in the tumbleform chair that used to be Isaac's

Malachi enjoyed the fibre optic lights (although taking photos when he was sat on my lap wasn't easy!)

Isaac getting his certificate

Isaac with the fibre optic lights

We all had a lovely time and Isaac particularly enjoyed snack time as usual.  It was a bit weird having Malachi there doing a lot of the things Isaac did when he first started, kind of like the ghost of christmas past!  In a way it was sad to be going for the last time but it's a huge milestone that he doesn't need to be there anymore.

Monday, 12 December 2011

Another manic monday

By some miracle we were early for school this morning.  Jeremiah enjoyed the school trip to the theatre and Isaac enjoyed his final session at TOG.  I had quite a long talk with the lady who runs TOG about Isaac's school needs.  Not quite sure how it's going to work out.  I think there will be between 1/4 and 1/3 of the class who have special needs which is a big percentage but I think it will be a good thing for Isaac as he hates being thought of as less able or different although at times he will use his disability to his own advantage, especially when being told off!

Friday, 9 December 2011

T'was the fortnight before Christmas

Malachi is in a cuddle me or I'll scream the house down kind of mood today.  So I'm catching up with emails and updating my blog.
Only one week at school before the holidays.  In some ways I'm glad there is only 1 week left but on the other hand I haven't done my christmas cards yet or finished my christmas shopping.  Jeremiah was a cow in the nativity play yesterday.  It will be Isaac's last day at TOG on monday, then the christmas party on thursday.  It will be quite emotional I think.  Isaac has been going for 3 years and the staff there have helped him so much.  I was originally planning to keep him going there until he started school but we are really struggling with transport at the moment and he technically doesn't need TOG any more.

I managed to talk to the reception teacher about Isaac's school needs.  I don't think she realised he was that severe to be honest.  She is going to talk to the senco about him and she reassured me that if he can only cope with 2 mornings a week at first then that's fine and they won't rush him.

We have a furry houseguest at the moment.  A cat turned up last night and we are trying to find her owners without much luck so far.  Simon is going to take her to the vet tomorrow to see if she is microchipped.