I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Showing posts with label Church. Show all posts
Showing posts with label Church. Show all posts

Tuesday, 29 January 2013

Long time no blog

Just realised I haven't blogged in over a month.  So here is a summary of what we've been up to.

Isaac did his nativity play at the church with the other children in the reception class.  Much to my surprise (and the teacher's too, I think) he went on the stage with the other shepherds with a huge grin on his face and a lot of waving in my direction.  Timmy the sheep came too, which helped I think.

 
 
We remembered Elisha, born to soon a year before and Eleanor who would have been 7 at around that time too.
 
Christmas came and went with the usual excitement and chocolate consumption.
 
Followed quickly by Malachi's 2nd birthday.  Two years have gone by so quickly.
 
Then the snow.  Jeremiah and Malachi loved it, Isaac wasn't too sure.  Malachi, always wanting to join in with the big boys, insisted on going out in the snow and walking round the garden holding my hands.
 


 
This little one is just starting to walk.  Plodding along with an intense look of concentration on his faceand then falling on his bottom after a few steps.  He is getting there, slowly but surely.

Saturday, 12 November 2011

Does anyone know?

How to comment on a blog?  Every time I try it says my account doesn't have access to make comments, even on my own blog.  Answers on a postcard please, or in a comment on this post.  If I reply you'll know I managed to work out how!

Jeremiah had his school photos done this week.  They are gorgeous.  He also went on a trip with his class across Wellington to the Methodist church.  This is one of the reasons I didn't become a teacher.  Because taking 26 4 and 5 year olds out would be my idea of a nightmare.  Still, everyone who went made it back in one piece and the teacher said they'd all been very good.

Isaac has had a good week.  On Sunday we had a jamming session together.  I held the guitar and did the chords while Isaac strummed.  The look of wonderment on his face when he realised he was playing a song was amazing.

Waitrose does this charity thing where you get a green token and you get a choice of 3 local charities to vote for.  You put your token in the box belonging to the charity you want to vote for and after a month or so they distribute some money between the 3 charities according to how many tokens are in each box.  We normally only go to Waitrose to use the loo but this month one of the chairities was the play therapy department at the hospital.  So we decided to go in, buy a cake and show our support.  Isaac went one step further and sat on top of the charity box telling everyone to put their token in the middle slot.  Anyone who didn't got a stern look and a "but the middle one is for the children at the hostital".  When the manager came and told him to get down he pulled his disabled rights card and said "I've got tired legs".  At this point I decided it was time to put him back in the buggy and go home.

Malachi is 10 months old today.  Still not crawling or even sitting but he is so happy and smiley.  He has 4 teeth and weighs 17lb 3oz which is on the 9th centile.  I am going to organise for him to have a session in the multi sensory room at TOG before Isaac leaves.  I think he will enjoy that, I know Isaac did when he was that age.

I got a phonecall from the genetics nurse this week.  She said that they were going to stop tyring to take blood from me and just look at Isaac's results which should come through in about 2 weeks.  She wasn't too hopeful about finding a link between Isaac's genetics and Malachi's though which I wish I'd known before letting Isaac have the blood test.  Also the geneticist has gone off sick and so our appointment will probably be in April next year which seems a long time away.

Thursday, 8 September 2011

Isaac at preschool and assorted ramblings

Isaac went off to preschool for the first time yesterday.  He was absolutely fine and went off to play like he'd been going for years.  This morning he took one step in the door and burst into tears.  Absolutely shattered.  I had a chat with the supervisor and we agreed that I would go and have a wander round town for 5-10 minutes and then phone them to see if he had settled.  When I phoned he was fine so I went home.  He'll be in bed early tonight I think, it's been a long week for him, and for all of us.  Thank goodness it's Friday tomorrow.

On Tuesday we went to breastfeeding group.  Apparantly there has been complaints from other mums about older children being at the group so they have stopped coming.  The health visitor has suggested that we have 2 groups, one for non-mobile babies and one for mobile babies, toddlers and babies with older siblings who come too.  Problem is I can't see them being able to find any peer supporters to run the group for non mobile babies if you have to have breastfed for 3 months at least to do the course (they prefer 6 months) and then you have to have childcare for your baby when he or she becomes mobile.  From a selfish point of view it's annoying for me because I had volunteerd to do the peer supporter course but I can't now because they need someone for the non mobile group and I have Isaac and hopefully Malachi will be on the move soon anyway.  Apart from that it was lovely to have some adult conversation again and 2 of the mums announced their pregnancies which was all very exciting and made me feel quite nostalgic although any hint of broodiness stopped when they started talking about morning sickness!

Yesterday after I'd taken Isaac to preschool I took the opportunity to get as much infatrini milk for Malachi as I could fit in the buggy.  I managed to get one box in Isaac's seat and 2 bags in the basket.  It's a good thing I thought of that as the pharmacy have said that I have to collect Malachi's medicines all in one go rather than in little bits at a time like I was doing.  After school we went to the after school club at the church which Jeremiah's school is attached to.  Parents stay and sit in the corner with tea and biscuits while the school aged children play games, do a craft activity and listen to a story.  The toddlers mostly chase each other round the church.  This time Jeremiah was old enough to do the activities without my help so I got to have a good gossip and a cuddle with my friend's baby girl.  Isaac came up to me while I was cuddling the baby and he said in a loud whisper "mummy, you've got the wrong baby"

Like I said, it's been a long week and it's not over yet.