I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Saturday, 23 March 2013

This week I've been...

...Suffering with a cold and doing Isaac's DLA form.  I hate that form, 63 questions where I have to compare Isaac to a "normal" nearly 5 year old and explain the differences.  Also a new question wanting details of all appointments for the last 12 months.  All done while trying to have a conversation with Malachi about the Octonauts.  At least it's done now and I just have to hope that it's renewed at the same rate as before, for longer than a year this time.

Monday, 11 March 2013

Malachi's 2 year check

Today we went to see the new health visitor for Malachi's 2 year check.  Apart from flinging himself on the floor in a massive strop and making me feel like the worst mother ever, he did well and the health visitor ticked all her boxes.  However she said she was very concerned about his height as he hasn't grown since he was last measured in december although his weight has remained steady on the 9th centile, where it has been since the reflux stopped.  So she is going to speak to the GP about it and review his height again in June.  He has come a long way and is doing really well.

Meanwhile I left Isaac in a bad mood at school this morning and not even his favourite teaching assistant could cheer him up.  I'm waiting in the very long telephone triage queue to speak to the GP about his legs as the antihistamines don't seem to be working.  He managed a whole week at school last week, although he spent most of Friday in his wheelchair.

Jeremiah had a visit from the tooth fairy this week and now has another wobbly tooth.  He's looking very grown up these days and unlike Malachi he seems to be growing at an alarming rate.  Still, it will be good news for Isaac when he gets a whole load of barely worn hand me downs!

Tuesday, 5 March 2013

March already

So it's already March and I haven't blogged since the end of January.  4 weeks until Easter holidays (yes, I'm counting) and things are ticking over with a few big changes too.  Jeremiah has his first wobbly tooth.  Isaac has started full time school this week.  Malachi has moved from the cot to a bed which means a lot less sleep is being had by me.  It's a good job he's cute or the "hello mummy" at various intervals through the night would be a lot more irritating!  Got 6 hours sleep last night which was a vast improvement.  I won't even mention what the other nights were like!  Not much else has been happening, just little things like Isaac going into school happy today.  He is also on antihistamines while the GP tries to work out whether is red and swollen legs and feet are an eds thing or an allergy.

The difference between full blown EDS and otherwise symptomless hypermobility was demonstrated yesterday.  Jeremiah leant forward and put his head between his legs.  Don't ask me why, I think it's just one of those things that children do that make no sense at all.  Isaac tried to do the same thing, went too far, lost his balance and hit his head on the pavement, oh dear.  Hopefully he's learnt that it's not always a good idea to copy his brother.