I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Saturday, 23 March 2013
Monday, 11 March 2013
Meanwhile I left Isaac in a bad mood at school this morning and not even his favourite teaching assistant could cheer him up. I'm waiting in the very long telephone triage queue to speak to the GP about his legs as the antihistamines don't seem to be working. He managed a whole week at school last week, although he spent most of Friday in his wheelchair.
Jeremiah had a visit from the tooth fairy this week and now has another wobbly tooth. He's looking very grown up these days and unlike Malachi he seems to be growing at an alarming rate. Still, it will be good news for Isaac when he gets a whole load of barely worn hand me downs!
Tuesday, 5 March 2013
The difference between full blown EDS and otherwise symptomless hypermobility was demonstrated yesterday. Jeremiah leant forward and put his head between his legs. Don't ask me why, I think it's just one of those things that children do that make no sense at all. Isaac tried to do the same thing, went too far, lost his balance and hit his head on the pavement, oh dear. Hopefully he's learnt that it's not always a good idea to copy his brother.