I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Wednesday, 29 August 2012
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Thursday, 23 August 2012
Sunday, 19 August 2012
Yesterday Simon, his dad, Jeremiah and Isaac went on a 6 mile hike. Simon spent most of the time trying to get the wheelchair through the mud and I had to clean the wheelchair afterwards but I'm glad Isaac was able to be included. Today on the radio they were talking about the paralympics and someone mentioned wheelchair rugby so I think I got off lightly. I wouldn't want to clean a rugby players wheelchair!
Monday, 13 August 2012
Not sure where the pink stripe came from. And the jubilee building under construction.
The orthotist managed to sort Isaac out at the same time which was nice. He now has some black piedro boots on order with velcro fastenings (I never knew they did them with velcro fastenings) and he thinks inserts to be worn inside his plimsolls/daps will be what he needs for PE but he needs to check his notes first. All in all a very successful appointment.
Sunday, 12 August 2012
Friday, 10 August 2012
They looked so funny, Jeremiah driving like a racing driver and Isaac sat calmly reading a magazine!
Thursday, 9 August 2012
Wednesday, 8 August 2012
Isaac was still tired from his holiday 2 weeks ago and he was reluctant to show the dr his walking skills. But I managed to persuade him to get off the examination couch where he was trying to fall asleep and walk around the room. The dr agreed with me and the GP about his ankles being too unstable for him to wear plimsoles/daps for PE at school and so he needs to see the orthotist to sort out something. We already have an appointment with the orthotist on 3rd september to measure his feet for new piedro boots so we are going to have the PE shoes appointment then as well. We came out 10 mins before our appointment time so after a quick detour to the hospital shop for the older two to choose some sweets we came home. We were only gone for an hour and a half which has to be a new record.
Saturday, 4 August 2012
Malachi loves it and he feels so much lighter in it than he did in the 2nd hand mothercare one. I think it will be more comfortable with him on my back but I'm not brave enough to try that yet.
Thursday, 2 August 2012
We got Malachi weighed and measured at the childrens centre (8.77kg, 73cm). He'd lost a tiny bit of weight and his length had slowed down a bit but as he'd eaten quite a lot just before the last weigh in and hadn't this time I wasn't worried. He is now following the 2nd centile for weight and is 2.5cm below the 0.4th centile for height. Nicola and the dietician are still convinced that if he puts on loads of weight he will catch up in length but so far that hasn't happened. But as he is no longer failure to thrive the various professionals aren't panicking about his weight so we will carry on with the small amount of infatrini he is on and keep weighing him every month.
While we were in the childrens centre the builders at the school next door set off the smoke alarm so we all had to troop outside to the park and wait to be let back in. Isaac in particular wasn't impressed until the fire engine turned up!
On the walk back into town one of the front wheels of Isaac's wheelchair fell off going up a kerb and Jeremiah ran over a piece of glass and a thorn with the buggy which proved to much for the slime filled inner tubes. I managed to get the wheelchair wheel back on. It's the 2nd time it's happened so I knew what to do but I'll be phoning the engineers today to get them to come and have a look as it's not very safe and if the bolts fell down a drain when the wheel flys off another time we could end up stranded. We were only a little way from the bike shop by this point so I pushed the buggy while Jeremiah pushed the wheelchair, trailing slime as we went.
So it was an eventful trip out but we did end up meeting 4 friends which was nice. Getting out and about is hard with all 3 of them and the wheelchair etc but I'm glad we did it. Internet shopping is all very well but I think we all needed a change of scene and to talk with different people. We're off to the hospital on Tuesday which will be a good opportunity for Isaac to practice self propelling on the shiny floors.