I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Wednesday 29 August 2012

Update on Maddy's letter

She now has a facebook page and has been on the news and in the newspapers in Australia.

https://www.facebook.com/groups/409596975764766/#!/MaddysEhlersDanlosSyndromeLetterToTheWorld

Please like her page, share it on your facebook/blog and help raise awareness of Ehlers Danlos Syndrome
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