I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Wednesday, 8 August 2012


Yesterday Isaac had his appointment with the orthopaedic surgeon.  We got there early because the buses are so unpredictable and I'm glad we did because we got called in 20 mins before his appointment time.  We took the ergo and the wheelchair and I found the ergo so much better than my other baby carrier.  I think carrying him on my back will be better though as it's tricky paying the bus driver while trying to stop little hands from getting in my purse!

Isaac was still tired from his holiday 2 weeks ago and he was reluctant to show the dr his walking skills.  But I managed to persuade him to get off the examination couch where he was trying to fall asleep and walk around the room.  The dr agreed with me and the GP about his ankles being too unstable for him to wear plimsoles/daps for PE at school and so he needs to see the orthotist to sort out something.  We already have an appointment with the orthotist on 3rd september to measure his feet for new piedro boots so we are going to have the PE shoes appointment then as well.  We came out 10 mins before our appointment time so after a quick detour to the hospital shop for the older two to choose some sweets we came home.  We were only gone for an hour and a half which has to be a new record.

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