I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Friday, 27 January 2012
It looks like Malachi had lost that weight and reducing the infatrini was a bit premature. But increasing the infatrini again seems to be helping which is good so no need to panic about his weight. He is also being referred for more intensive physio. No news on Isaac's blood results yet.
Jeremiah got a certificate this week which was awarded at the church. We sat at the back near the aisle so we could get a good view of the children coming in. Jeremiah waved as usual and Isaac waved at Jeremiah and a couple of the other children who he knows as well. I don't know why but I always get a bit emotional when I see the children walking in crocodile fashion from the school to the church. The Headmaster first, then Haslett class, with two of them carrying the school flag. Jeremiah's class (Newnham) is always right at the end as they are the youngest. I think I'll need to take tissues with me the first time I watch Isaac walk to the church with the rest of his class. Hopefully he will make it without falling over.
Friday, 20 January 2012
I got Malachi weighed on Tuesday and either he has lost a lot of weight in the last 2 months without me noticing or the scales are wrong. We are going to see Nicola next Tuesday so we'll see what the hospital scales say. In the meantime I'm giving him as much infatrini as possible.
Sunday, 15 January 2012
In other news, Malachi is now sitting by himself for increasing periods of time. He had his first session in the sensory room at TOG on Friday and really enjoyed himself.