I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Friday, 20 January 2012

School entry plan meeting

Isaac has his school entry plan meeting on 19th March.  It's getting close now, in a few months time my little boy will be starting school.  The SENCO asked me to drop his paediatrician's phone number in to the office when I had a minute and I had to admit that I knew the number by heart.  Although to be fair it's on a list of important phone numbers I keep attatched to the boiler so I see it every time I use the washing machine.  I've also had to fill in a form to get a new blue badge for him as his got lost.  They want to know how many times he fell over in the last year (how should I know, I didn't keep count) and how far he can walk unaided in steps or metres.  I tried counting steps but lost count when Isaac kept asking me why I was counting!  I'm going to ask Simon's Grandad how far the length of the car park is and see how far Isaac can get across it before he falls over.

I got Malachi weighed on Tuesday and either he has lost a lot of weight in the last 2 months without me noticing or the scales are wrong.  We are going to see Nicola next Tuesday so we'll see what the hospital scales say.  In the meantime I'm giving him as much infatrini as possible.

No comments:

Post a Comment