I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Friday, 30 September 2011

That friday feeling

It's Friday and Simon is off work next week thank goodness.  We've had a busy week this week.  Tuesday we went to breastfeeding group.  Only 4 of us this week and one is going back to work on monday.  Then in the afternoon it was the time to chat group.  It was just Mel and I (again).  We decided to make sensory bottles next time for one of the physios who has recently had a baby. Wednesday was preschool and so was Thursday.  Today was my "day off" so I started blitzing the boys room.  I've also been tie dying some white cot sheets and some other bits ready for when Malachi moves from the moses basket into the cot.  I don't think the cot bedding will be dry in time for tonight but we should be putting away the moses basket at some point this weekend.

This afternoon Jeremiah was in a special assembly at school.  He was one of 2 children with a speaking part and he did really well, he spoke loudly and clearly.  Unfortunately Malachi was also speaking loudly and clearly lol so once Jeremiah had done his bit we left.

Next week Malachi has appointments with Nicola and his physio.  Isaac has an appointment with his occupational therapist (I'm hoping she will discharge him).  I have a parents forum meeting at the childrens centre so it's going to be another busy week.

Monday, 26 September 2011

Nits again - argh

Jeremiah has nits again.  I've combed through his hair, he had loads.  I didn't have any (thank goodness for that).  I'm going to bath Isaac and comb his hair in a minute.  I'm not sure whether I'm supposed to keep him off school tomorrow or not.  He is meant to be kept off until he has been treated but I don't know if that means until he has been treated once or until he is completely clear.

The carnival was brilliant.  Jeremiah loved every minute.  I think this is the first year he has been old enough to appreciate it.  Isaac loved the fire engines and he fell asleep near the end.  Malachi slept through some of it too.

Friday, 23 September 2011

Malachi's first tooth

Well as the title says, Malachi has a tooth.  Or to be more accurate, Malachi has a tiny white speck!  I've been trying to photograph those last gummy smiles before it comes through properly but he is keeping his mouth firmly shut whenever I get the camera out.  I did manage to catch Isaac and Malachi having snuggle time though.

They do this quite a lot but I've never managed to get a photo before.  All three of them get on really well mostly and Jeremiah and Isaac love giving Malachi cuddles and singing to him which is lovely.  We're having a quiet day today.  Getting on with the housework and playing with the little ones.  I've noticed that Isaac will play quietly for ages with Malachi when it's just the 2 of them at home but as soon as Jeremiah gets home he suddenly gets more lively and wants to join in with whatever Jeremiah is doing.

We still haven't had the forms for the chromasone testing yet.  I just want to get it over with now, preferably when Simon is off work so he can come for moral support.  I phoned Nicola yesterday and she is going to chase them up for me.

It's been a fairly quiet week this week, but then I think we've needed it.  Wellington Carnival tomorrow which should be fun.  There is always a big party atmosphere while we wait for it to start.  I wonder what Malachi will think of it.  He loves music but it can be a bit loud.  I think Isaac will appreciate it more this year now that he's a bit older.  We've got folding chairs this time so no more standing around.

Monday, 19 September 2011

Isaac's journey in pictures

Last week I finally got round to putting the photos from baby group on a CD for my friend.  While I was looking through the old photos it made me think about how much progress Isaac has made over the last 3 years.
Me and Isaac minutes after birth

With his NG tube in aged 5 months

At Tog aged 9 months

Isaac on his 1st birthday weighing 14lbs

Isaac aged 18 months

Standing with support aged 22 months

Isaac in his special needs buggy.  Aged 2 years 2 months

In his standing frame aged 2 years 7 months

"Look Mummy I is walking"  aged 2 years 10 months

Proud big brother aged 3 years

Wednesday, 14 September 2011

Wednesday weigh in

Today I went to the childrens centre to see the health visitor and get Malachi weighed.  He weighed in at 7.2kg which is 15lb 15oz.  His head lag is improving too which was encouraging.  He has been nearly sitting for over a month now so it's nice to know he is improving in other ways.  I had a chat with the health visitor about the breastfeeding group and it was suggested that the mums of older babies could meet in the new room at rockwell green.  One of the staff at the children's centre has asked me to be a case study for the childrens centre that they can show to ofsted as an example of how the childrens centre helps individual families.

Tuesday, 13 September 2011

Tuesday ramblings

Just me and Mel at time to chat today.  I got to take home the jaffa cakes though so it's not all bad news!  Mel told me Isaac had been mentioned at MAISEY today along with all the other children starting school in September next year.  The lady who runs TOG just said he was doing brilliantly and will be leaving TOG at Christmas.  He will still be on MAISEY and have a transition to school meeting in the summer term.

The powers that be in charge of breastfeeding in somerset have decided that as of October 11th mums with mobile babies and toddlers will no longer be welcome at the breastfeeding group.  The ladies who run it are trying to sort out another venue for those of us no longer allowed to attend, which is most of us.  I think they are making a huge mistake to be honest but only time will tell.

Preschool tomorrow and getting Malachi weighed.  Another day of rushing around like a mad thing.  2 weeks and 3 days until Simon's week off work!

Monday, 12 September 2011

Malachi - 8 months

Malachi is 8 months old today.  This weekend he has done a bit of rolling and he's getting quite good at it.  Today has been a manic day.  Took Isaac to TOG (Taunton Opportunity Group) today.  Malachi and I went to new parents group and then we all went to the drop in group this afternoon.  Isaac slept 13 hours last night and he was still tired this morning.

I've been promoting the time to chat group this summer and so has Mel, the portage worker.  Today 3 mums said they'd be there which is an exciting yet terrifying thought.  Mel and I have been meeting up for a year now trying to run a group that nobody else goes to and while it's exciting that we might get some other people coming, I'm worried that they'll come and not like it.  I'll let you know how it goes tomorrow.

Thursday, 8 September 2011

Isaac at preschool and assorted ramblings

Isaac went off to preschool for the first time yesterday.  He was absolutely fine and went off to play like he'd been going for years.  This morning he took one step in the door and burst into tears.  Absolutely shattered.  I had a chat with the supervisor and we agreed that I would go and have a wander round town for 5-10 minutes and then phone them to see if he had settled.  When I phoned he was fine so I went home.  He'll be in bed early tonight I think, it's been a long week for him, and for all of us.  Thank goodness it's Friday tomorrow.

On Tuesday we went to breastfeeding group.  Apparantly there has been complaints from other mums about older children being at the group so they have stopped coming.  The health visitor has suggested that we have 2 groups, one for non-mobile babies and one for mobile babies, toddlers and babies with older siblings who come too.  Problem is I can't see them being able to find any peer supporters to run the group for non mobile babies if you have to have breastfed for 3 months at least to do the course (they prefer 6 months) and then you have to have childcare for your baby when he or she becomes mobile.  From a selfish point of view it's annoying for me because I had volunteerd to do the peer supporter course but I can't now because they need someone for the non mobile group and I have Isaac and hopefully Malachi will be on the move soon anyway.  Apart from that it was lovely to have some adult conversation again and 2 of the mums announced their pregnancies which was all very exciting and made me feel quite nostalgic although any hint of broodiness stopped when they started talking about morning sickness!

Yesterday after I'd taken Isaac to preschool I took the opportunity to get as much infatrini milk for Malachi as I could fit in the buggy.  I managed to get one box in Isaac's seat and 2 bags in the basket.  It's a good thing I thought of that as the pharmacy have said that I have to collect Malachi's medicines all in one go rather than in little bits at a time like I was doing.  After school we went to the after school club at the church which Jeremiah's school is attached to.  Parents stay and sit in the corner with tea and biscuits while the school aged children play games, do a craft activity and listen to a story.  The toddlers mostly chase each other round the church.  This time Jeremiah was old enough to do the activities without my help so I got to have a good gossip and a cuddle with my friend's baby girl.  Isaac came up to me while I was cuddling the baby and he said in a loud whisper "mummy, you've got the wrong baby"

Like I said, it's been a long week and it's not over yet.

Monday, 5 September 2011

Jeremiah back at school

Jeremiah went back to school today.  He is in a class of 26 this year rather than the 15 from last year and he is in a mixed year class.  He enjoyed his first day and was excited to be back.  The reception class are split in two groups so the older children are doing mornings this week while the younger ones are doing afternoons.  The 7 year ones in the class are there all day.  The rest of the year one children are in the year 2 class.  This morning you couldn't tell the new children from the older ones but this afternoon there was quite a big difference.
Why can I never get a decent photo of Jeremiah?

We managed to walk home from school in 45 minutes which was good for a 1.5 mile walk.

Reagan's Reason

Raising awareness for my friend's little girl.


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Friday, 2 September 2011

The park, snow and the price of cot sheets

Yesterday we went to the park again.  It was probably one of the sunniest days we have had all summer.  There were lots of people feeding the ducks, playing football and sunbathing.  Jeremiah and Isaac enjoyed themselves and came back covered in sand as usual.
Isaac spent a lot of the time on the slide/climbing frame in the shape of a train.  Jeremiah spent most of the time moving too fast for me to take photos.

Today we played snow on a baking tray.  We got some toy cars and some of that weird soapy foam stuff and Jeremiah had great fun burying the cars in the "snow".  Isaac wasn't too keen.  He said it was messy so he watched from a distance, letting out a shriek whenever Jeremiah flicked "snow" at him.

I need to move Malachi out of the moses basket into the cot.  He still fits it it fine but I'm hoping that having the room to roll around will encourage him to do it more.  It's kind of sad though, knowing that when I put the moses basket away it will be for the last time.  I've washed the hood and the lining so it's all ready for the final photo.  I thought I'd buy some new bedding for the cot as the stuff I've got has been puked on and washed so many times it's looking tatty now.  When I looked on the mothercare website I was quite shocked at how expensive everything was.  £22.99 for a cot blanket!  Babies r us were charging similar.  I'm going to look on ebay.