I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Friday, 30 September 2011
This afternoon Jeremiah was in a special assembly at school. He was one of 2 children with a speaking part and he did really well, he spoke loudly and clearly. Unfortunately Malachi was also speaking loudly and clearly lol so once Jeremiah had done his bit we left.
Next week Malachi has appointments with Nicola and his physio. Isaac has an appointment with his occupational therapist (I'm hoping she will discharge him). I have a parents forum meeting at the childrens centre so it's going to be another busy week.
Monday, 26 September 2011
The carnival was brilliant. Jeremiah loved every minute. I think this is the first year he has been old enough to appreciate it. Isaac loved the fire engines and he fell asleep near the end. Malachi slept through some of it too.
Friday, 23 September 2011
They do this quite a lot but I've never managed to get a photo before. All three of them get on really well mostly and Jeremiah and Isaac love giving Malachi cuddles and singing to him which is lovely. We're having a quiet day today. Getting on with the housework and playing with the little ones. I've noticed that Isaac will play quietly for ages with Malachi when it's just the 2 of them at home but as soon as Jeremiah gets home he suddenly gets more lively and wants to join in with whatever Jeremiah is doing.
We still haven't had the forms for the chromasone testing yet. I just want to get it over with now, preferably when Simon is off work so he can come for moral support. I phoned Nicola yesterday and she is going to chase them up for me.
It's been a fairly quiet week this week, but then I think we've needed it. Wellington Carnival tomorrow which should be fun. There is always a big party atmosphere while we wait for it to start. I wonder what Malachi will think of it. He loves music but it can be a bit loud. I think Isaac will appreciate it more this year now that he's a bit older. We've got folding chairs this time so no more standing around.
Monday, 19 September 2011
Wednesday, 14 September 2011
Tuesday, 13 September 2011
The powers that be in charge of breastfeeding in somerset have decided that as of October 11th mums with mobile babies and toddlers will no longer be welcome at the breastfeeding group. The ladies who run it are trying to sort out another venue for those of us no longer allowed to attend, which is most of us. I think they are making a huge mistake to be honest but only time will tell.
Preschool tomorrow and getting Malachi weighed. Another day of rushing around like a mad thing. 2 weeks and 3 days until Simon's week off work!
Monday, 12 September 2011
I've been promoting the time to chat group this summer and so has Mel, the portage worker. Today 3 mums said they'd be there which is an exciting yet terrifying thought. Mel and I have been meeting up for a year now trying to run a group that nobody else goes to and while it's exciting that we might get some other people coming, I'm worried that they'll come and not like it. I'll let you know how it goes tomorrow.
Thursday, 8 September 2011
On Tuesday we went to breastfeeding group. Apparantly there has been complaints from other mums about older children being at the group so they have stopped coming. The health visitor has suggested that we have 2 groups, one for non-mobile babies and one for mobile babies, toddlers and babies with older siblings who come too. Problem is I can't see them being able to find any peer supporters to run the group for non mobile babies if you have to have breastfed for 3 months at least to do the course (they prefer 6 months) and then you have to have childcare for your baby when he or she becomes mobile. From a selfish point of view it's annoying for me because I had volunteerd to do the peer supporter course but I can't now because they need someone for the non mobile group and I have Isaac and hopefully Malachi will be on the move soon anyway. Apart from that it was lovely to have some adult conversation again and 2 of the mums announced their pregnancies which was all very exciting and made me feel quite nostalgic although any hint of broodiness stopped when they started talking about morning sickness!
Yesterday after I'd taken Isaac to preschool I took the opportunity to get as much infatrini milk for Malachi as I could fit in the buggy. I managed to get one box in Isaac's seat and 2 bags in the basket. It's a good thing I thought of that as the pharmacy have said that I have to collect Malachi's medicines all in one go rather than in little bits at a time like I was doing. After school we went to the after school club at the church which Jeremiah's school is attached to. Parents stay and sit in the corner with tea and biscuits while the school aged children play games, do a craft activity and listen to a story. The toddlers mostly chase each other round the church. This time Jeremiah was old enough to do the activities without my help so I got to have a good gossip and a cuddle with my friend's baby girl. Isaac came up to me while I was cuddling the baby and he said in a loud whisper "mummy, you've got the wrong baby"
Like I said, it's been a long week and it's not over yet.
Monday, 5 September 2011
Friday, 2 September 2011
I need to move Malachi out of the moses basket into the cot. He still fits it it fine but I'm hoping that having the room to roll around will encourage him to do it more. It's kind of sad though, knowing that when I put the moses basket away it will be for the last time. I've washed the hood and the lining so it's all ready for the final photo. I thought I'd buy some new bedding for the cot as the stuff I've got has been puked on and washed so many times it's looking tatty now. When I looked on the mothercare website I was quite shocked at how expensive everything was. £22.99 for a cot blanket! Babies r us were charging similar. I'm going to look on ebay.