I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Wednesday, 28 November 2012
Children in need day came around again and we went to ASDA after school as usual so that Jeremiah could hug the man dressed up in a pudsey suit. Isaac wasn't too keen though which led to the following conversation:
Isaac: I could be on children in need
Jeremiah: No you couldn't
Isaac: Yes I could, I've got a wheelchair
Jeremiah: Yes, but you're scared of Pudsey
I think Jeremiah had a point!
Yesterday Isaac, Malachi and I had our flu jabs. Isaac went first as usual. It was the usual trauma of me picking him up and the nurse jabbing him ASAP. Not very dignified but better than being in hospital with flu (again). Oddly enough it was Malachi who calmed him down by not making a sound when he had his done, taking us all by surprise and stopping Isaac in his tracks. Then I had mine and off we went to buy cake as is tradition after an appointment where needles are involved.
Wednesday, 7 November 2012
Malachi's physio appointment was this morning. He's doing well and getting close to walking. He can walk pushing along Isaac's toy fire engine for a few steps but he prefers to sit on it. I asked about getting him a kaye walker but he is too short for one.
The physio said that Isaac is showing signs of arthritis so he needs a blood test for that when we see Nicola next month. I knew he was likely to get it earlier than normal because of his hypermobility but I didn't think it would be this early. In the meantime I'm trying not to panic (easier said than done).
Tuesday, 6 November 2012
So now Jeremiah and Isaac are back at school. Parents evening tonight, physio with Malachi tomorrow. Only 7 weeks until the Christmas holidays and yes I am counting!