I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Wednesday, 7 November 2012
parents evening and physio
Malachi's physio appointment was this morning. He's doing well and getting close to walking. He can walk pushing along Isaac's toy fire engine for a few steps but he prefers to sit on it. I asked about getting him a kaye walker but he is too short for one.
The physio said that Isaac is showing signs of arthritis so he needs a blood test for that when we see Nicola next month. I knew he was likely to get it earlier than normal because of his hypermobility but I didn't think it would be this early. In the meantime I'm trying not to panic (easier said than done).