I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Wednesday, 17 April 2013


Our 2nd rainbow baby

Currently known as "Severus" (for those of you who have read some of the Harry Potter books but not the last one, he turns out to be a nice man in the end!).  Due in July, just after Jeremiah's birthday.  As you can probably see from the photo, Severus has a cleft lip.  We don't know about the palate yet but in the bottom photo he/she is sucking his/her thumb which we are hoping is a good sign when it comes to feeding.  For the benefit of my readers who have suffered baby loss and/or infertility I will try to remember to include (pregnancy mentioned) in any pregnancy related blog entries so you can avoid reading them if you prefer.

In other news, Isaac's DLA has been awarded.  Same rates as before (middle rate care, high rate mobility) but for 5 years this time instead of the usual 1-2 years.  We have decided to get a car with the mobility component this time so we have chosen a silver vauxhall zafira and we are currently waiting for the motability people to check and approve the paperwork before the vauxhall garage order the car.  Meanwhile I'm trying very hard not to get impatient.  We've been without a car we can all fit in for about a year now and I've really missed being able to go out places as a family.