I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Showing posts with label Pre-school. Show all posts
Showing posts with label Pre-school. Show all posts

Friday, 20 July 2012

End of term

Jeremiah finished year one yesterday and today was Isaac's leaving party and presentation thing at preschool.


No school runs for six weeks!  I've got a few things planned for the holidays, including various craft activities and trips to the park.

Tuesday, 5 June 2012

Update on us

Thought I'd better do an update post as a lot has happened in the last few weeks.  On 11th May I got a phone call from exeter mobility centre asking me why we hadn't come to Isaac's appointment.  Somehow the letter had got lost in the post, argh.  On 12th May we had my birthday celebrations, going to a new park, cocktails in the garden and out for dinner.  Then we all came down with the hideous tummy bug that was going round the school so I spent my 30th birthday cleaning up puke.

Last week was the week of appointments.  On Monday we went to the GP who referred Isaac to the orthapeadic surgeon to try and sort out what shoes he can wear for PE.  Then we went to orthotics at the hospital where they said that Isaac's feet haven't grown so he doesn't need new piedro boots.  On tuesday Isaac did preschool in the morning while Malachi and I did breastfeeding group.  The health visitor had a good moan at me for postponing Isaac and Malachi's immunisations for later in the week.  In the afternoon we went to school to meet the occupational therapist, her student, the lady from the PIMS team and the school senco.  The occupational therapist was lovely and actually asked Isaac what he wanted which was nice.  She went round measuring everything and has ordered steps, grab rails and a toilet seat.

On Wednesday morning Isaac had his school induction meeting.  We heard the same speech from the head and the teacher that we heard when Jeremiah started and we were shown a short video of what I thought would be the current reception class but turned out to be Jeremiah's year group.  On Wednesday afternoon Isaac slept for 3 hours, absolutely shattered.  On thursday Isaac was meant to be at preschool but at 11:30 they phoned me up and asked me to collect him as he had fallen asleep.  So glad I postponed the immunisations.  On Friday we had a letter from exter mobility centre and Isaac's new appointment is on 11th June.  Isaac and I have already picked the wheelchair we would like.  I really hope they agree and I'm worried they will offer us a special needs buggy or nothing at all.  Isaac hates being "babied" because of his disabilities so he won't be happy if he has to go to school in a buggy.  If we get nothing I won't be able to leave the house once he grows out of the buggy we have.

This week is half term.  A chance to recharge our batteries and get some housework done before another busy week next week.

Tuesday, 8 May 2012

All about Isaac

As Isaac gets ready to start school things seem to be all about him at the moment.  We seem to have more and more appointments and different proffessionals are getting involved.  We are still waiting rather impatiently for an appointment with wheelchair services.  Isaac's friend has just got a wheelchair and Isaac had a go in it last week.  It was so much easier to push than the buggy and Isaac could wheel himself a little way too.

Today I talked to the SENCO at school about Isaac going part time.  He is going to start off going Monday, Wednesday and Friday mornings.  I took him to the disabled toilet at school today but he couldn't manage it himself.  He keeps saying it's his toilet and he wants to visit it every day.  He is doing really well with the potty training and has been dry for 4 days in a row.  It's a lot harder than when he was in nappies but I'm so proud of him for managing it.  He is at the stage when he wants to try out every toilet when we are out so the time in between picking him up from preschool and picking Jeremiah up from school is quickly filled up with a toilet tour of Wellington!  Isaac has been going to preschool all day on Thursdays as well as Tuesday mornings since Easter.  He is enjoying it but he is absolutely shattered afterwards.

I will try and blog about Jeremiah and Malachi next time.

Tuesday, 28 February 2012

busy days

Yesterday Isaac had his feet measured and he needs the next size up piedro boots.  I had a scary conversation with someone who's child has hypermobility about as severely as Isaac.  Her son dislocates his joints which Isaac doesn't and I thought he wouldn't do but she told me that her son wasn't dislocating at Isaac's age, he started at 5 years old.  There are times like this when I feel scared for his future.  Then today a lady came to the breastfeeding group with her 2nd baby who had been going when Isaac was tiny.  She asked how Isaac was, if he still had his feeding tube?  He has come a long way in his short life.

Isaac had his assessment by the lady from the PIM's team (Physical Impairment Medical I think) at preschool.  I stayed and watched.  There wasn't any difference physically between him and the youngest children and he walked up the steps to the slide which he doesn't normally do at home.  He went to sleep for 2 hours leaving me wondering how he will cope with a full day at school and if not how will I cope with walking into wellington and back 3 times a day.

Malachi was weighed today and had lost a tiny bit from last weigh in but gained from the last weigh in on those scales at that time of day.  I suggested that I increase Malachi's infatrini again but the community nurse was reluctant to suggest that without approval from a paed so I have increased the infatrini back to 2 bottles a day and I need to phone Nicola tomorrow to tell her.  We seem to have developed a pattern of Malachi gains weight, infatrini gets dropped/reduced, Malachi loses weight, infatrini increased over and over again.  This time I will keep him on the increased dose for longer.  For those who are interested Malachi now weighs 7.34kg which is 18lb 3oz if I remember rightly.

Sunday, 26 February 2012

Long time, no blog

This week we have been walking to school.  Every time we do this I'm amazed at the amount of money we don't save.  The buggy has needed 2 new inner tubes which cost £20.  Tomorrow Isaac has a hospital appointment which will cost us £9 in bus fares.  The weekly tickets would have cost us £33 pounds so we have saved a grand total of £4.  Oh dear.  Hopefully we will soon be fitter as a result, at the moment I think we are all just tired.

On Tuesday someone is coming to observe Isaac in pre-school to decide how much help he will get at school.  I'm going to stay while she does it so that I can tell her if he is having a good day or not.  I'm looking forward to seeing him at preschool as normally I just drop him off and go.

The weather has been amazing for February and Jeremiah and Isaac have been playing in the garden.  I will have to get some suncream!

Malachi has learnt to commando crawl and wave.  Simon got the 6-9 month clothes down from the loft and it's been lovely dressing him in all his "new" outfits.

Saturday, 11 February 2012

Half term

Today is the first day of half term.  We have a broken mobile phone, broken down freezer and a broken down car but at least school and preschool have finished for 10 days.  Half way through the school year already.  Isaac has struggled through the last week or so and has had a nap in the afternoon more often than not.  It's times like this that I worry about how he will manage school in September.  Jeremiah is doing really well at school although he is not impressed that there is no playing in the morning anymore.  The teacher told me that he is so good at getting on with his work on his own.  Can this be the same child who I have to nag to get ready for school in the morning?

Monday, 9 January 2012

Back at school

Only 4 weeks and 4 days to go until half term.  3 day week this week as Simon has thursday and friday off work.  Preschool and breastfeeding group tomorrow, baby clinic and a hospital trip on wednesday.  On thursday Malachi will be one!  It has gone so fast.  I can't believe it was a year ago that we sat watching 9 months and hoping watching another baby being born would kickstart my birth hormones.

Wednesday, 4 January 2012

Back to school and preschool tomorrow

Jeremiah go back to school and preschool tomorrow.  I have to be up at 6am.  Only 5 weeks and 2 days until half term, not that I'm counting!

Friday, 14 October 2011

Update on the breastfeeding group saga

This tuesday was the relaunch of the breastfeeding group.  I went to the childrens centre in the afternoon for the time to chat group and the staff there said there were loads of mums and babies there.  So no chance of the health visitors ringing me and begging me to come back then.  On wednesday I swallowed my pride and went to Isaac's preschool to ask if I could change his days so that I can go to the breastfeeding group with Malachi while Isaac is at pre-school.  On the way I met one of the peer supporters and we had a bit of a chat.  She said that all the other people who had been thrown out weren't happy about it either which was comforting to know as I thought it was just me.  The peer supporters in particular have made a big effort running the group.  The preschool were fine with me changing Isaac's days so I will be back at the breastfeeding group after half term.

I went to see the health visitor and she said that it had been decided that the group will be for mums with babies under one year only, regardless of how mobile they are.  So Malachi and I will be out on our ears again in January.  Apparantly seeing mums successfully breastfeeding babies over a year old will make the mums struggling feel inadequate.  I will carry on going to the breastfeeding group until we are chucked out again but I won't be getting there early to set up or staying late to pack away and wash up.

Friday, 30 September 2011

That friday feeling

It's Friday and Simon is off work next week thank goodness.  We've had a busy week this week.  Tuesday we went to breastfeeding group.  Only 4 of us this week and one is going back to work on monday.  Then in the afternoon it was the time to chat group.  It was just Mel and I (again).  We decided to make sensory bottles next time for one of the physios who has recently had a baby. Wednesday was preschool and so was Thursday.  Today was my "day off" so I started blitzing the boys room.  I've also been tie dying some white cot sheets and some other bits ready for when Malachi moves from the moses basket into the cot.  I don't think the cot bedding will be dry in time for tonight but we should be putting away the moses basket at some point this weekend.

This afternoon Jeremiah was in a special assembly at school.  He was one of 2 children with a speaking part and he did really well, he spoke loudly and clearly.  Unfortunately Malachi was also speaking loudly and clearly lol so once Jeremiah had done his bit we left.

Next week Malachi has appointments with Nicola and his physio.  Isaac has an appointment with his occupational therapist (I'm hoping she will discharge him).  I have a parents forum meeting at the childrens centre so it's going to be another busy week.

Thursday, 8 September 2011

Isaac at preschool and assorted ramblings

Isaac went off to preschool for the first time yesterday.  He was absolutely fine and went off to play like he'd been going for years.  This morning he took one step in the door and burst into tears.  Absolutely shattered.  I had a chat with the supervisor and we agreed that I would go and have a wander round town for 5-10 minutes and then phone them to see if he had settled.  When I phoned he was fine so I went home.  He'll be in bed early tonight I think, it's been a long week for him, and for all of us.  Thank goodness it's Friday tomorrow.

On Tuesday we went to breastfeeding group.  Apparantly there has been complaints from other mums about older children being at the group so they have stopped coming.  The health visitor has suggested that we have 2 groups, one for non-mobile babies and one for mobile babies, toddlers and babies with older siblings who come too.  Problem is I can't see them being able to find any peer supporters to run the group for non mobile babies if you have to have breastfed for 3 months at least to do the course (they prefer 6 months) and then you have to have childcare for your baby when he or she becomes mobile.  From a selfish point of view it's annoying for me because I had volunteerd to do the peer supporter course but I can't now because they need someone for the non mobile group and I have Isaac and hopefully Malachi will be on the move soon anyway.  Apart from that it was lovely to have some adult conversation again and 2 of the mums announced their pregnancies which was all very exciting and made me feel quite nostalgic although any hint of broodiness stopped when they started talking about morning sickness!

Yesterday after I'd taken Isaac to preschool I took the opportunity to get as much infatrini milk for Malachi as I could fit in the buggy.  I managed to get one box in Isaac's seat and 2 bags in the basket.  It's a good thing I thought of that as the pharmacy have said that I have to collect Malachi's medicines all in one go rather than in little bits at a time like I was doing.  After school we went to the after school club at the church which Jeremiah's school is attached to.  Parents stay and sit in the corner with tea and biscuits while the school aged children play games, do a craft activity and listen to a story.  The toddlers mostly chase each other round the church.  This time Jeremiah was old enough to do the activities without my help so I got to have a good gossip and a cuddle with my friend's baby girl.  Isaac came up to me while I was cuddling the baby and he said in a loud whisper "mummy, you've got the wrong baby"

Like I said, it's been a long week and it's not over yet.