I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Showing posts with label physio. Show all posts
Showing posts with label physio. Show all posts

Friday, 26 July 2013

The rest of last week

Last Tuesday, Ezekiel and I went to the breastfeeding group.  As it's for mums with babies up to 4 months now we probably won't be able to go again before Ezekiel is too old.  Still, it was nice to have a chat to other mums with babies the same age as Ezekiel.

Wednesday was my day off!  Well, a day off from appointments anyway.  I spent a big part of the day sorting out the outgrown clothes and putting them in labelled boxes to go up in the loft.

Thursday was mine and Ezekiel's 6 week check.  All fine except my blood pressure was a bit high.  I was holding a screaming Ezekiel at the time and willing the appointment to be finished so I could go and feed him so that's probably why. 

Friday was physio.  Ezekiel has low muscle tone in his arms and core and high muscle tone in his legs.  We have some exercises to do with him and we see her again in 2 weeks.

Jeremiah and Isaac finished school on Monday.  The health visitor came to weigh Ezekiel on Monday and she is so pleased with his weight gain we only have to get him weighed once a week now.  This week has mostly been taken up by feeding, pumping, housework and various activities at home.  I haven't attempted to take all 4 of them out on my own yet.  Tomorrow we will be picking up the big car from the Vauxhall garage.

Wednesday, 7 November 2012

parents evening and physio

So parents evening was last night and both boys are doing well.  Jeremiah's teacher had an appointment system and Isaac's was a drop in so Simon went to Jeremiah's and I went to Isaac's with all 3 children in tow.  Jeremiah asked Isaac's teachers how he was getting on which was super cute.  Isaac's teacher said that underneath the grumpy exterior there is a happy, bright little boy trying to get out.  Jeremiah's teacher said he can read more words than anyone else in his year.

Malachi's physio appointment was this morning.  He's doing well and getting close to walking.  He can walk pushing along Isaac's toy fire engine for a few steps but he prefers to sit on it.  I asked about getting him a kaye walker but he is too short for one.

The physio said that Isaac is showing signs of arthritis so he needs a blood test for that when we see Nicola next month.  I knew he was likely to get it earlier than normal because of his hypermobility but I didn't think it would be this early.  In the meantime I'm trying not to panic (easier said than done).

Tuesday, 6 November 2012

Back to school again

We spent half term doing mostly nothing apart from a trip to puxton park.




So now Jeremiah and Isaac are back at school.  Parents evening tonight, physio with Malachi tomorrow.  Only 7 weeks until the Christmas holidays and yes I am counting!

Friday, 11 May 2012

Malachi and physio

Malachi had his physio session on Wednesday.  We nearly didn't make it thanks to the bus we needed to catch being a double decker.  The physio was really pleased with his progress and thinks he will be walking in the summer.  I sometimes feel that I don't take Malachi's issues seriously enough because he is not as bad as Isaac so it was good to know that he really was doing well and it wasn't just me thinking that.  He is into everything at the moment, trying to nose dive off the changing mat and will crawl towards an open stairgate at the speed of light.

The physio wants Malachi to have piedro boots but his feet are so tiny they don't make them small enough.  He is being referred to orthotics anyway to see if they can suggest anything.  She also remembered Isaac which I thought was impressive seeing as she last saw Isaac at 5 months old.  She said nobody could forget Isaac but I'm not sure if that's a good thing or not!

Isaac has a GP appointment next week to be referred to the orthopaedic team to sort out shoes for him to wear for PE at school.  Then occupational therapy to measure him for a chair.  Jeremiah is doing well.  They had a supply teacher yesterday who brought his guitar which was very popular with the class.  Even the little girl who has autism and doesn't do change well really liked him.

Friday, 27 January 2012

Update on us

Malachi had his appointment with Nicola on Tuesday.  We were a bit late due to 2 double decker buses coming along one after the other.  I'd already dragged Isaac, Malachi, the folded buggy, handbag and changing bag onto a double decker bus once that day so I decided to take the chance that Nicola was running late.  Malachi was weighed (7.4kg) and measured (67.9cm).  Nicola was running late but I didn't mind that as I know she doesn't rush people when they have questions.  Also there is so much for the children to do in the waiting room.

It looks like Malachi had lost that weight and reducing the infatrini was a bit premature.  But increasing the infatrini again seems to be helping which is good so no need to panic about his weight.  He is also being referred for more intensive physio.  No news on Isaac's blood results yet.

Jeremiah got a certificate this week which was awarded at the church.  We sat at the back near the aisle so we could get a good view of the children coming in.  Jeremiah waved as usual and Isaac waved at Jeremiah and a couple of the other children who he knows as well.  I don't know why but I always get a bit emotional when I see the children walking in crocodile fashion from the school to the church.  The Headmaster first, then Haslett class, with two of them carrying the school flag.  Jeremiah's class (Newnham) is always right at the end as they are the youngest.  I think I'll need to take tissues with me the first time I watch Isaac walk to the church with the rest of his class.  Hopefully he will make it without falling over.

Wednesday, 5 October 2011

Back to the hospital

On Monday we went back to the hospital to see Nicola and the physio.  Jeremiah was off school with a cold and a bit of a temperature and Simon is on holiday from work this week so all 5 of us ended up going.  Nicola was running late so we had 40 mins in the waiting room (thank goodness the boys love it there because there are loads of toys.  Malachi was weighed and measured (7.3kg 67cm).  We saw the physio who said that he has made some progress but he has dropped off the physical development chart again.  She gave us some more exercises to do with Malachi.

We then saw Nicola who was really pleased with his progress and she said we could try weaning him off the drugs when he gets to 8kg.  She also sorted out the microarray test.  Isaac needed his done in paediatrics so they sent us down to CAU.  There was a long wait there so we got sent back down to peadiatric outpatients.  Simon took Isaac in to have his blood taken and I could hear him screaming from the waiting room.  I just hope they got all the blood they needed this time.  We had to go to the phlebotomy department at the other end of the hospital for ours and I didn't fancy carrying Malachi, the changing bag and my handbag all that way so Simon went to get the buggy from the car.  Simon had his blood taken no problem but after 2 goes and wiggling the needle around (ouch) they couldn't get mine so I have to go back today when the head phlebotomist is in as she used to do all my pregnancy blood tests.

Yesterday Malachi and I went to the breastfeeding group and the hv told us I couldn't bring Isaac from next week as they are changing it to non walking babies only.  I'm not impressed I have to say.  I'm going to ask the preschool if we can change Isaac's sessions so I can still go.

Yesterday afternoon Isaac's OT came round.  She said she couldn't take the highchair, we have to wait for medequip to come and get it.  She also said she couldn't discharge him without checking with her supervisor first.

Friday, 30 September 2011

That friday feeling

It's Friday and Simon is off work next week thank goodness.  We've had a busy week this week.  Tuesday we went to breastfeeding group.  Only 4 of us this week and one is going back to work on monday.  Then in the afternoon it was the time to chat group.  It was just Mel and I (again).  We decided to make sensory bottles next time for one of the physios who has recently had a baby. Wednesday was preschool and so was Thursday.  Today was my "day off" so I started blitzing the boys room.  I've also been tie dying some white cot sheets and some other bits ready for when Malachi moves from the moses basket into the cot.  I don't think the cot bedding will be dry in time for tonight but we should be putting away the moses basket at some point this weekend.

This afternoon Jeremiah was in a special assembly at school.  He was one of 2 children with a speaking part and he did really well, he spoke loudly and clearly.  Unfortunately Malachi was also speaking loudly and clearly lol so once Jeremiah had done his bit we left.

Next week Malachi has appointments with Nicola and his physio.  Isaac has an appointment with his occupational therapist (I'm hoping she will discharge him).  I have a parents forum meeting at the childrens centre so it's going to be another busy week.