I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Friday, 11 May 2012

Malachi and physio

Malachi had his physio session on Wednesday.  We nearly didn't make it thanks to the bus we needed to catch being a double decker.  The physio was really pleased with his progress and thinks he will be walking in the summer.  I sometimes feel that I don't take Malachi's issues seriously enough because he is not as bad as Isaac so it was good to know that he really was doing well and it wasn't just me thinking that.  He is into everything at the moment, trying to nose dive off the changing mat and will crawl towards an open stairgate at the speed of light.

The physio wants Malachi to have piedro boots but his feet are so tiny they don't make them small enough.  He is being referred to orthotics anyway to see if they can suggest anything.  She also remembered Isaac which I thought was impressive seeing as she last saw Isaac at 5 months old.  She said nobody could forget Isaac but I'm not sure if that's a good thing or not!

Isaac has a GP appointment next week to be referred to the orthopaedic team to sort out shoes for him to wear for PE at school.  Then occupational therapy to measure him for a chair.  Jeremiah is doing well.  They had a supply teacher yesterday who brought his guitar which was very popular with the class.  Even the little girl who has autism and doesn't do change well really liked him.

Tuesday, 8 May 2012

All about Isaac

As Isaac gets ready to start school things seem to be all about him at the moment.  We seem to have more and more appointments and different proffessionals are getting involved.  We are still waiting rather impatiently for an appointment with wheelchair services.  Isaac's friend has just got a wheelchair and Isaac had a go in it last week.  It was so much easier to push than the buggy and Isaac could wheel himself a little way too.

Today I talked to the SENCO at school about Isaac going part time.  He is going to start off going Monday, Wednesday and Friday mornings.  I took him to the disabled toilet at school today but he couldn't manage it himself.  He keeps saying it's his toilet and he wants to visit it every day.  He is doing really well with the potty training and has been dry for 4 days in a row.  It's a lot harder than when he was in nappies but I'm so proud of him for managing it.  He is at the stage when he wants to try out every toilet when we are out so the time in between picking him up from preschool and picking Jeremiah up from school is quickly filled up with a toilet tour of Wellington!  Isaac has been going to preschool all day on Thursdays as well as Tuesday mornings since Easter.  He is enjoying it but he is absolutely shattered afterwards.

I will try and blog about Jeremiah and Malachi next time.