Malachi had his appointment with Nicola on Tuesday. We were a bit late due to 2 double decker buses coming along one after the other. I'd already dragged Isaac, Malachi, the folded buggy, handbag and changing bag onto a double decker bus once that day so I decided to take the chance that Nicola was running late. Malachi was weighed (7.4kg) and measured (67.9cm). Nicola was running late but I didn't mind that as I know she doesn't rush people when they have questions. Also there is so much for the children to do in the waiting room.
It looks like Malachi had lost that weight and reducing the infatrini was a bit premature. But increasing the infatrini again seems to be helping which is good so no need to panic about his weight. He is also being referred for more intensive physio. No news on Isaac's blood results yet.
Jeremiah got a certificate this week which was awarded at the church. We sat at the back near the aisle so we could get a good view of the children coming in. Jeremiah waved as usual and Isaac waved at Jeremiah and a couple of the other children who he knows as well. I don't know why but I always get a bit emotional when I see the children walking in crocodile fashion from the school to the church. The Headmaster first, then Haslett class, with two of them carrying the school flag. Jeremiah's class (Newnham) is always right at the end as they are the youngest. I think I'll need to take tissues with me the first time I watch Isaac walk to the church with the rest of his class. Hopefully he will make it without falling over.
Showing posts with label blood test. Show all posts
Showing posts with label blood test. Show all posts
Friday, 27 January 2012
Wednesday, 2 November 2011
Lots of little things
This week has been really busy with lots of little things. Isaac's new piedro boots have come. Not red ones like we ordered but he likes them anyway. I have been chasing up my blood test and getting nowhere. Malachi and I have been allowed back to the breastfeeding group where there were 3 other mums and a very sheepish looking health visitor! I have made lentil and bacon soup. Isaac has been going to preschool. Jeremiah has been building things out of lego. Lots of little things
Wednesday, 26 October 2011
Oh tumbledryer I've missed you
My tumble dryer is fixed! I've been catching up on the piles of washing that has been building up since the weather has been bad. The man from medequip came to take away Isaac's highchair so we no longer have any special needs eqipment in the house. Isaac proudly told the delivery man that he didn't need it anymore, so cute.
The blood test on Monday was a disaster. She tried 4 times but couldn't get it. She got 1ml but that wasn't enough. She asked me to go to the oncology department to get the rest as she thought they would be good at getting it as people who have cancer often have bad veins but by then I was bruised, the children were fed up and we were all soaking wet from the rain so I said I would go home and ring the oncology department. It was a good thing I did that because the oncology nurse said I couldn't be seen there without a GP referral and even then probably not as I'm not an oncology patient. So I rang the GP surgery and the receptionist was saying that the nurse there could have a go but I said no, I only wanted someone who was really good at taking blood to do it as I'd had 10 failed attempts already. So the receptionist said she would get the GP to ring me the next morning. The GP rang yesterday and she is going to talk to Nicola and ask her to persuade someone at the oncology department to do it. I should hear from them by the end of the week.
The highchair
Isaac waving goodbye to the highchair
The blood test on Monday was a disaster. She tried 4 times but couldn't get it. She got 1ml but that wasn't enough. She asked me to go to the oncology department to get the rest as she thought they would be good at getting it as people who have cancer often have bad veins but by then I was bruised, the children were fed up and we were all soaking wet from the rain so I said I would go home and ring the oncology department. It was a good thing I did that because the oncology nurse said I couldn't be seen there without a GP referral and even then probably not as I'm not an oncology patient. So I rang the GP surgery and the receptionist was saying that the nurse there could have a go but I said no, I only wanted someone who was really good at taking blood to do it as I'd had 10 failed attempts already. So the receptionist said she would get the GP to ring me the next morning. The GP rang yesterday and she is going to talk to Nicola and ask her to persuade someone at the oncology department to do it. I should hear from them by the end of the week.
Malachi in his new cardigan
Jeremiah with his special award cup
Jeremiah in the lego shop in Cardiff
Jeremiah and Malachi fell asleep holding hands
Monday, 24 October 2011
Photo of Malachi
My gorgeous littlest one
I can't work out how to turn the photo round.
Half term holiday this week. Isaac is absolutely shattered. He refused to walk for most of the day on Friday. It's been a long half term for him. He could really do with this holiday and some new piedro boots too. The piedro boots have been measured for and ordered so hopefully it won't be too long. I've got my blood test this afternoon, hopefully they get it this time.
Half term holiday this week. Isaac is absolutely shattered. He refused to walk for most of the day on Friday. It's been a long half term for him. He could really do with this holiday and some new piedro boots too. The piedro boots have been measured for and ordered so hopefully it won't be too long. I've got my blood test this afternoon, hopefully they get it this time.
Monday, 10 October 2011
Jeremiah's special award
Jeremiah got the special award cup at school on friday. Simon and I went to watch him get it in assembly. When the teacher announced his name there was a big gasp and spontaneous applause, the teacher had to tell them to stop clapping!
Malachi has a cold. Which means he is puking a lot. I rang Nicola's secretary to see if he needs his medication increasing again or if we should wait it out. I put him on the scales at the children's centre today when we were in for the baby group and he was 7.4kg so still following the line between the 2nd and 9th centile.
I had another attempt at getting my blood taken on friday. It was not a success. I have to make an appointment at the dr surgery for another go.
Tomorrow Isaac has an appointment with surgical orthotics to be fitted for new piedro boots. I was chatting to another mum at the school gates today and she said that if I'm ever stuck at the hospital she is happy to pick up Jeremiah from school for me. It's so hard to make friends with people when you see them most days but only for 5 minutes or so. I feel like I'm getting there now though.
Two more weeks until half term. And the tumble dryer man is coming! I'm very excited which is a bit sad really.
Malachi has a cold. Which means he is puking a lot. I rang Nicola's secretary to see if he needs his medication increasing again or if we should wait it out. I put him on the scales at the children's centre today when we were in for the baby group and he was 7.4kg so still following the line between the 2nd and 9th centile.
I had another attempt at getting my blood taken on friday. It was not a success. I have to make an appointment at the dr surgery for another go.
Tomorrow Isaac has an appointment with surgical orthotics to be fitted for new piedro boots. I was chatting to another mum at the school gates today and she said that if I'm ever stuck at the hospital she is happy to pick up Jeremiah from school for me. It's so hard to make friends with people when you see them most days but only for 5 minutes or so. I feel like I'm getting there now though.
Two more weeks until half term. And the tumble dryer man is coming! I'm very excited which is a bit sad really.
Wednesday, 5 October 2011
Back to the hospital
On Monday we went back to the hospital to see Nicola and the physio. Jeremiah was off school with a cold and a bit of a temperature and Simon is on holiday from work this week so all 5 of us ended up going. Nicola was running late so we had 40 mins in the waiting room (thank goodness the boys love it there because there are loads of toys. Malachi was weighed and measured (7.3kg 67cm). We saw the physio who said that he has made some progress but he has dropped off the physical development chart again. She gave us some more exercises to do with Malachi.
We then saw Nicola who was really pleased with his progress and she said we could try weaning him off the drugs when he gets to 8kg. She also sorted out the microarray test. Isaac needed his done in paediatrics so they sent us down to CAU. There was a long wait there so we got sent back down to peadiatric outpatients. Simon took Isaac in to have his blood taken and I could hear him screaming from the waiting room. I just hope they got all the blood they needed this time. We had to go to the phlebotomy department at the other end of the hospital for ours and I didn't fancy carrying Malachi, the changing bag and my handbag all that way so Simon went to get the buggy from the car. Simon had his blood taken no problem but after 2 goes and wiggling the needle around (ouch) they couldn't get mine so I have to go back today when the head phlebotomist is in as she used to do all my pregnancy blood tests.
Yesterday Malachi and I went to the breastfeeding group and the hv told us I couldn't bring Isaac from next week as they are changing it to non walking babies only. I'm not impressed I have to say. I'm going to ask the preschool if we can change Isaac's sessions so I can still go.
Yesterday afternoon Isaac's OT came round. She said she couldn't take the highchair, we have to wait for medequip to come and get it. She also said she couldn't discharge him without checking with her supervisor first.
We then saw Nicola who was really pleased with his progress and she said we could try weaning him off the drugs when he gets to 8kg. She also sorted out the microarray test. Isaac needed his done in paediatrics so they sent us down to CAU. There was a long wait there so we got sent back down to peadiatric outpatients. Simon took Isaac in to have his blood taken and I could hear him screaming from the waiting room. I just hope they got all the blood they needed this time. We had to go to the phlebotomy department at the other end of the hospital for ours and I didn't fancy carrying Malachi, the changing bag and my handbag all that way so Simon went to get the buggy from the car. Simon had his blood taken no problem but after 2 goes and wiggling the needle around (ouch) they couldn't get mine so I have to go back today when the head phlebotomist is in as she used to do all my pregnancy blood tests.
Yesterday Malachi and I went to the breastfeeding group and the hv told us I couldn't bring Isaac from next week as they are changing it to non walking babies only. I'm not impressed I have to say. I'm going to ask the preschool if we can change Isaac's sessions so I can still go.
Yesterday afternoon Isaac's OT came round. She said she couldn't take the highchair, we have to wait for medequip to come and get it. She also said she couldn't discharge him without checking with her supervisor first.
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