I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Wednesday, 12 August 2015

Summer holidays

Finally whatever happened to stop me uploading photos has resolved itself.  We're now halfway through the summer holidays.  Jeremiah is on his way home from Scotland after climbing ben nevis.  Isaac is mostly resting and refuelling ready to start year 3 in September.  Malachi is excited about starting school.  Ezekiel has had 5 lumbar punctures and 3 MRI scans so far and still no further forward than we were at the beginning.  Zechariah is crawling and generally getting into everything.