I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Sunday, 2 September 2012

The end of the holidays

Just one more day and the older 2 will be going to school.  We've done some tie dying this week which mostly turned out well.  We watched some of the paralympics and Isaac was curious about why the althletes didn't take their wheelchairs in the pool.  Malachi is ready for the 9-12 month clothes to come down from the loft.  Isaac has been wheeling himself around in his wheelchair and yesterday he went round the flower show wheeling himself most of the time.

Tomorrow we will be going to the hospital to pick up Isaac's piedro boots and hopefully something to support his feet in PE.  The name labels have arrived and I just need to iron them into their uniforms.  We are ready for school to begin although I know I would rather have more holiday.

However the school is not ready for Isaac.  The grab rails haven't been put in, the steps haven't arrived, the toilet seat isn't here and nor is the step for the toilet seat.  His chair assessment hasn't been done and they haven't applied for extra funding yet.  The adaptations will be sorted by the end of the week, I have been told and in the meantime the class TA will be taking Isaac to the toilet, holding his hand when he goes up and down steps and trying to avoid him being squashed.  And I am repeating to myself that he will only be going to school for 6 hours a week and trying not to panic.

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