I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Tuesday, 4 September 2012
Orthotics, a party, EDS awareness and going back to school
On our way out Jeremiah noticed a sign about a party and free cake. It was the hospital's 70th birthday and there were lots of 1940's themed stuff going on. A journalist came and interviewed Isaac and Jeremiah and took photos. http://www.tauntonpeople.co.uk/Musgrove-Park-Hospital-throws-40s-themed-birthday/story-16813667-detail/story.html - this is the story. http://www.tauntonpeople.co.uk/pictures/Musgrove-Park-Hospital-Taunton-70th-birthday-bash/pictures-16813628-detail/pictures.html - these are the pictures.
Maddy's campaign has spread further. She won the Pride of Australia award and appeared on television as well. http://au.news.yahoo.com/today-tonight/health/article/-/14753623/maddisons-disease. She asks that everyone google Ehlers Danlos syndrome and read about it for 5 minutes.
Today both the big boys went to school. Malachi and I were nearly late, thanks to the bus, but we got there on time. Jeremiah went in without a backward glance and Isaac had to be prized off my leg. He had a good day though, he is absolutely shattered now. Pictures tomorrow hopefully.