I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Tuesday 5 March 2013

March already

So it's already March and I haven't blogged since the end of January.  4 weeks until Easter holidays (yes, I'm counting) and things are ticking over with a few big changes too.  Jeremiah has his first wobbly tooth.  Isaac has started full time school this week.  Malachi has moved from the cot to a bed which means a lot less sleep is being had by me.  It's a good job he's cute or the "hello mummy" at various intervals through the night would be a lot more irritating!  Got 6 hours sleep last night which was a vast improvement.  I won't even mention what the other nights were like!  Not much else has been happening, just little things like Isaac going into school happy today.  He is also on antihistamines while the GP tries to work out whether is red and swollen legs and feet are an eds thing or an allergy.

The difference between full blown EDS and otherwise symptomless hypermobility was demonstrated yesterday.  Jeremiah leant forward and put his head between his legs.  Don't ask me why, I think it's just one of those things that children do that make no sense at all.  Isaac tried to do the same thing, went too far, lost his balance and hit his head on the pavement, oh dear.  Hopefully he's learnt that it's not always a good idea to copy his brother.

No comments:

Post a Comment