I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Monday 11 March 2013

Malachi's 2 year check

Today we went to see the new health visitor for Malachi's 2 year check.  Apart from flinging himself on the floor in a massive strop and making me feel like the worst mother ever, he did well and the health visitor ticked all her boxes.  However she said she was very concerned about his height as he hasn't grown since he was last measured in december although his weight has remained steady on the 9th centile, where it has been since the reflux stopped.  So she is going to speak to the GP about it and review his height again in June.  He has come a long way and is doing really well.

Meanwhile I left Isaac in a bad mood at school this morning and not even his favourite teaching assistant could cheer him up.  I'm waiting in the very long telephone triage queue to speak to the GP about his legs as the antihistamines don't seem to be working.  He managed a whole week at school last week, although he spent most of Friday in his wheelchair.

Jeremiah had a visit from the tooth fairy this week and now has another wobbly tooth.  He's looking very grown up these days and unlike Malachi he seems to be growing at an alarming rate.  Still, it will be good news for Isaac when he gets a whole load of barely worn hand me downs!

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