I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).
Jeremiah has Autism.
Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.
Malachi has hypermobility and wears piedro boots to support his ankles
Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay
Zechariah was born with sepsis and has mild development delay.
Thursday, 11 August 2011
Malachi - almost 7 months
Not sure what we are going to do with genetics. We are going to the appointment with an open mind and we'll just see what they suggest. I don't know if it will benefit Isaac and Malachi to have a diagnosis or whether it is worth persuing or not.