Update on Maddy's letter

She now has a facebook page and has been on the news and in the newspapers in Australia.

https://www.facebook.com/groups/409596975764766/#!/MaddysEhlersDanlosSyndromeLetterToTheWorld

Please like her page, share it on your facebook/blog and help raise awareness of Ehlers Danlos Syndrome

Things we haven't done yet

During the summer term if the older boys want to do something that's going to take up a lot of time I often tell them we will do it in the holidays.  At this stage of the holidays we usually realise we haven't done most of it!  So this week we have been to Upper Holway play area and French Weir park.  Just got playing in the ball pool, making new all about me books and tie dying t-shirts to do before they go back to school.

Playing quidditch

Well, the 4th week of the holidays has gone and we have mostly been playing quidditch in the garden.  Everyone riding on brooms, mops, toy golf clubs etc.  Trying to get the football (quaffle) in the trampoline net while also trying to find the bouncy ball (snitch) in the grass.  It has mostly been just me, Jeremiah and Isaac playing but today I sat Malachi on a broom and ran around with him and he was shrieking with excitement so I must make sure I help him play again next time.  Simon's Dad also played and spent some time moving the snitch around which make it more fun as the games were lasting longer and more chance to score goals.

Yesterday Simon, his dad, Jeremiah and Isaac went on a 6 mile hike.  Simon spent most of the time trying to get the wheelchair through the mud and I had to clean the wheelchair afterwards but I'm glad Isaac was able to be included.  Today on the radio they were talking about the paralympics and someone mentioned wheelchair rugby so I think I got off lightly.  I wouldn't want to clean a rugby players wheelchair!

Tiny shoes

Malachi's piedro boots, size 17 in european sizes.  I think this is a size 1 or 3-6 months in english sizes.

Not sure where the pink stripe came from.  And the jubilee building under construction.

The orthotist managed to sort Isaac out at the same time which was nice.  He now has some black piedro boots on order with velcro fastenings (I never knew they did them with velcro fastenings) and he thinks inserts to be worn inside his plimsolls/daps will be what he needs for PE but he needs to check his notes first.  All in all a very successful appointment.

19 months

Malachi is 19 months old today and I am still breastfeeding him.  I am beginning to hope we might make it to 2 years this time.

This is how he rolls

Today we went into wellington to get more photos developed for the holiday scrapbooks and to buy a few bits from ASDA.  Isaac walked for the first part and then got into his wheelchair for a rest.  While we were going round ASDA, I took this photo:

They looked so funny, Jeremiah driving like a racing driver and Isaac sat calmly reading a magazine!

Photos

Because I keep forgetting to include photos with my posts.

Malachi playing with his jumping frog

Reading

Jeremiah and Isaac waiting for a bus in the rain