Just realised I haven't posted in nearly 3 weeks. Isaac's school entry review went ok. One of those meetings where we all agree nothing has changed so we carry on as we are and review again next year. Malachi was very good although he was eyeing up the headmaster's fruit bowl and saying "nana" every so often. Apparantly Jeremiah has been telling Isaac's teachers how to look after Isaac when he thinks they are doing it wrong. I think this is sweet but I appreciate it must be driving Isaac's teachers crazy.
Children in need day came around again and we went to ASDA after school as usual so that Jeremiah could hug the man dressed up in a pudsey suit. Isaac wasn't too keen though which led to the following conversation:
Isaac: I could be on children in need
Jeremiah: No you couldn't
Isaac: Yes I could, I've got a wheelchair
Jeremiah: Yes, but you're scared of Pudsey
I think Jeremiah had a point!
Yesterday Isaac, Malachi and I had our flu jabs. Isaac went first as usual. It was the usual trauma of me picking him up and the nurse jabbing him ASAP. Not very dignified but better than being in hospital with flu (again). Oddly enough it was Malachi who calmed him down by not making a sound when he had his done, taking us all by surprise and stopping Isaac in his tracks. Then I had mine and off we went to buy cake as is tradition after an appointment where needles are involved.
Wednesday, 28 November 2012
Wednesday, 7 November 2012
parents evening and physio
So parents evening was last night and both boys are doing well. Jeremiah's teacher had an appointment system and Isaac's was a drop in so Simon went to Jeremiah's and I went to Isaac's with all 3 children in tow. Jeremiah asked Isaac's teachers how he was getting on which was super cute. Isaac's teacher said that underneath the grumpy exterior there is a happy, bright little boy trying to get out. Jeremiah's teacher said he can read more words than anyone else in his year.
Malachi's physio appointment was this morning. He's doing well and getting close to walking. He can walk pushing along Isaac's toy fire engine for a few steps but he prefers to sit on it. I asked about getting him a kaye walker but he is too short for one.
The physio said that Isaac is showing signs of arthritis so he needs a blood test for that when we see Nicola next month. I knew he was likely to get it earlier than normal because of his hypermobility but I didn't think it would be this early. In the meantime I'm trying not to panic (easier said than done).
Malachi's physio appointment was this morning. He's doing well and getting close to walking. He can walk pushing along Isaac's toy fire engine for a few steps but he prefers to sit on it. I asked about getting him a kaye walker but he is too short for one.
The physio said that Isaac is showing signs of arthritis so he needs a blood test for that when we see Nicola next month. I knew he was likely to get it earlier than normal because of his hypermobility but I didn't think it would be this early. In the meantime I'm trying not to panic (easier said than done).
Tuesday, 6 November 2012
Back to school again
We spent half term doing mostly nothing apart from a trip to puxton park.
So now Jeremiah and Isaac are back at school. Parents evening tonight, physio with Malachi tomorrow. Only 7 weeks until the Christmas holidays and yes I am counting!
So now Jeremiah and Isaac are back at school. Parents evening tonight, physio with Malachi tomorrow. Only 7 weeks until the Christmas holidays and yes I am counting!
Wednesday, 31 October 2012
Wednesday, 24 October 2012
It's been a while
We've just been plodding along as usual, counting down the days until half term. I phoned school transport and was told that Isaac is not disabled enough to qualify for free school transport but if I send them letters from Simon's employer (saying he is at work at school run time), my GP (saying that I can't walk 9 miles a day pushing Isaac in the wheelchair and carrying Malachi) and Isaac's paediatrician (saying that he can't walk to school) along with copies of the DLA award and blue badge then they would consider it. I'm not sure if it's worth it to be honest. But it's only a few letters and a bit of photocopying says the lady from the school transport office. Yes, added to the other "only's" that I have to do whenever Isaac needs anything. So far I have phoned the paediatrician who is on holiday and made an appointment to see the health visitor which we had to cancel because Isaac was poorly.
In the meantime we found out that breakfast club is only 70p per day so now Simon is taking Jeremiah to that every morning and I am taking Isaac on the days he is in and collecting both of them. So now one of my children is always on time for school. Isaac now has ear defenders for school to try and block out some of the noise. He took them to school for the first time today so hopefully he will have a better morning than he has done.
Isaac was in the local paper this week. A photographer went round to all the reception classes in Somerset and took a photo. So here it is, 15 happy smiling children, and Isaac in a strop.
http://somerset.newsprints.co.uk/view/22486829/st_johns_wellington_recepti_jpg
And Jeremiah's one from 2 years ago, because I'm having a nostalgic moment
http://somerset.newsprints.co.uk/view/16075019/stjohnsreceptionsgwk41_jpg
15th October marked the end of baby loss awareness week and as is tradition we lit Eleanor's candle at 7pm for the international wave of light. I dithered about whether to light 2 candles this year but I couldn't find one or think of an idea to make one that felt right for Elisha so we just lit the one that we usually light.
Isaac finally told me why he didn't like school. Apparantly it's too noisy so he is now the proud owner of some ear defenders. So now he is happy although the teacher is having trouble getting him to take them off when she wants to talk to him. And he is even more unwilling to play with the other children in his class. According to him, Jeremiah is his best friend and he doesn't need anyone else. Not sure what Jeremiah thinks about that!
Malachi is at that in between stage, more toddler than baby now and cruising round the furniture. He has a cold so he is back on his inhaler again. He has also learnt to take apart disposable nappies so he is back in cloth nappies for the forseeable future. He doesn't really have the right shape for cloth nappies as he is very short and rather chubby so finding nappies that fit under his trousers is a challenge. His 9-12 month trousers are a bit long anyway so we can't get away with moving up a size to accomodate his nappy.
In the meantime we found out that breakfast club is only 70p per day so now Simon is taking Jeremiah to that every morning and I am taking Isaac on the days he is in and collecting both of them. So now one of my children is always on time for school. Isaac now has ear defenders for school to try and block out some of the noise. He took them to school for the first time today so hopefully he will have a better morning than he has done.
Isaac was in the local paper this week. A photographer went round to all the reception classes in Somerset and took a photo. So here it is, 15 happy smiling children, and Isaac in a strop.
http://somerset.newsprints.co.uk/view/22486829/st_johns_wellington_recepti_jpg
And Jeremiah's one from 2 years ago, because I'm having a nostalgic moment
http://somerset.newsprints.co.uk/view/16075019/stjohnsreceptionsgwk41_jpg
15th October marked the end of baby loss awareness week and as is tradition we lit Eleanor's candle at 7pm for the international wave of light. I dithered about whether to light 2 candles this year but I couldn't find one or think of an idea to make one that felt right for Elisha so we just lit the one that we usually light.
Isaac finally told me why he didn't like school. Apparantly it's too noisy so he is now the proud owner of some ear defenders. So now he is happy although the teacher is having trouble getting him to take them off when she wants to talk to him. And he is even more unwilling to play with the other children in his class. According to him, Jeremiah is his best friend and he doesn't need anyone else. Not sure what Jeremiah thinks about that!
Malachi is at that in between stage, more toddler than baby now and cruising round the furniture. He has a cold so he is back on his inhaler again. He has also learnt to take apart disposable nappies so he is back in cloth nappies for the forseeable future. He doesn't really have the right shape for cloth nappies as he is very short and rather chubby so finding nappies that fit under his trousers is a challenge. His 9-12 month trousers are a bit long anyway so we can't get away with moving up a size to accomodate his nappy.
Tuesday, 9 October 2012
A conversation with school transport services
The worst part of having a child with EDS is the red tape. I tried for the third time to get Isaac school transport today and it went like this:
No, we can't help you, phone this number, phone that number, then phone another number. No, we don't have any record of you applying before. At his age he should be able to walk 2 miles to school and you are only 1.5 miles away. Well, you could try filling in this long form and submit medical evidence why you need school transport but I doubt you'll get it, he's not disabled enough. Or you could try phoning yet another number tomorrow. He's a wheelchair user, how can he not qualify for school transport. Bangs head against the wall.
No, we can't help you, phone this number, phone that number, then phone another number. No, we don't have any record of you applying before. At his age he should be able to walk 2 miles to school and you are only 1.5 miles away. Well, you could try filling in this long form and submit medical evidence why you need school transport but I doubt you'll get it, he's not disabled enough. Or you could try phoning yet another number tomorrow. He's a wheelchair user, how can he not qualify for school transport. Bangs head against the wall.
Monday, 8 October 2012
One happy Isaac
For the second time this term Isaac went into school happy. I finally got out of him what has been bothering him at school. Apparantly it is too loud so I had a chat with the TA and the SENCO and they are going to try and get some ear defenders for him.
In other news, the road is being resurfaced. Which for us means more delays with the buses. We were late for school again this morning and I was nearly late picking Jeremiah up. I am seriously considering learning to drive as I'm so fed up with being late all the time because of the buses. Also when Isaac turns 5 I will be spending £68 a week on bus fares.
Tomorrow I will be having the day off. Dropping Jeremiah off at school and then coming home and catching up with various jobs until it's time to pick him up again.
In other news, the road is being resurfaced. Which for us means more delays with the buses. We were late for school again this morning and I was nearly late picking Jeremiah up. I am seriously considering learning to drive as I'm so fed up with being late all the time because of the buses. Also when Isaac turns 5 I will be spending £68 a week on bus fares.
Tomorrow I will be having the day off. Dropping Jeremiah off at school and then coming home and catching up with various jobs until it's time to pick him up again.
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