I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.

Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.

Monday, 10 June 2013

Life in special care

Now I've talked about Ezekiel's birth I should talk about what happened afterwards.  I was discharged from hospital on Thursday.  Ezekiel was moved from intensive care to special care on Thursday as well.  He is struggling with feeding and maintaining his temperature.  Nicola was concerned about the size of his head so he had an ultrasound and MRI scan.  This showed that he had enlarged ventricles in his brain and also extra fluid.  The images have been sent to Bristol for further investigation.

Due to his cleft lip and palate and his prematurity Ezekiel is struggling with feeding.  He has a feeding tube and he is also bottlefed with a squeezy bottle.  We have tried breastfeeding with a little bit of success but that is going to be a big challenge.  Meanwhile, I'm expressing.

My new camera arrived this morning so hopefully there will be more photos soon.

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