I'm Sophie, married to Simon and mum to Jeremiah (10), Isaac (8), Malachi (5), Ezekiel (3) and Zechariah (2). Also our 2 little ones in heaven, Eleanor (2005) and Elisha (2011).

Jeremiah has Autism.


Isaac has hypermobility syndrome/Ehlers Danlos type 3 and uses a wheelchair for anything other than very short distances.

Malachi has hypermobility and wears piedro boots to support his ankles

Ezekiel has a cleft palate, hydrocephalus, hypotonia and development delay

Zechariah was born with sepsis and has mild development delay.



Saturday 15 June 2013

Plodding along

Ezekiel is much the same.  Still sleeping a lot and still struggling to breastfeed.  I've got a cold so I'm not allowed into the neonatal unit.  On the plus side he is now officially "term" and I can now say that he was born premature rather than he is premature.  He has his discharge meeting on Wednesday and hopefully we'll be able to take him home soon after that.

Malachi is doing really well with his walking and his speech.  Simon has been taking him on the school run without the buggy so he has been getting a lot of walking practice.

Isaac is much the same too.  He has his squint repair on 27th June which is scarily close now.  Sports day is also looming and I need to talk to the school senco about how Isaac is going to take part.  His blue badge expires soon as well, must get that renewed.

Jeremiah is enjoying his swimming lessons at school.  He got his first swimming certificate yesterday, along with the rest of the children in his class.  http://www.stjohnscofeprimary.co.uk/keyinfo_detail.asp?Section=3&Ref=186

I am still pumping and struggling with the sitting still aspect of recovery from surgery.  No doubt in a few weeks I'll be desperate for a rest and won't be able to!  Simon is going back to work on Monday so his mum is coming to help do all the things I still can't do yet.

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